Ms. Harp stated that she has a rare bone cancer and was mistakenly given sterile water via IV while being care for in hospital. She says she was given palliative options and instructions to end her life but not offered curative care. https://www.foxnews.com/politics/millennial-cancer-joe-biden-trump-right-try-saved-life … 2/
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This story has received attention beyond the presidential tweet and
@foxandfriends interview, including claims that "Trump signing Right to Try last year helped her experiment with treatment". https://www.dailymail.co.uk/news/article-7148155/Cancer-fighter-slams-Biden-saying-hell-cure-disease-elected-says-Trump-kept-alive.html … 3/Show this thread -
But is this true?
@NatalieJHarp states in her original story about her experience that after initially failing two chemotherapies for her cancer, her oncologist gave her "an FDA-approved immunotherapy drug for an unapproved use" that worked for her. https://www.linkedin.com/pulse/im-living-proof-party-healthcare-trumps-natalie-harp-mba?articleId=6544639370236960769#comments-6544639370236960769&trk=public_profile_post … 4/Show this thread -
But that's not what
#RightToTry does. It circumvents the FDA to allow access to non-FDA approved investigational drugs that have cleared phase I trials and remain under investigation. It isn't for gaining access to off-label use. https://www.fda.gov/patients/learn-about-expanded-access-and-other-treatment-options/right-try … 5/Show this thread -
Given that this story is being used to promote
#RightToTry as a success, it is really important whether it was needed and used to give Ms. Harp access to treatment. But I haven't seen any news coverage questioning or confirming her version of events. Am I missing something? 6/Show this thread -
I'd be grateful for others' perspectives.
@ABatemanHouse@HollyLynchez@ArthurCaplan@NicholasFlorko@pzettler@kellyfolkers@SteveJoffeShow this thread -
And on it goes: ""Glad to see legislation I championed in the House helping our fellow Americans,” Congressman Brooks said. ..."Natalie Harp, who has battled stage 2 bone cancer for the majority of her life, is benefitting directly from Right to Try. ”"https://www.alreporter.com/2019/06/18/brooks-says-that-right-to-try-law-is-benefiting-people-fighting-terminal-illness/ …
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And again as
@realDonaldTrump announces his 2020 candidacy for President: https://www.c-span.org/video/?c4803435/trump-rtt …Show this thread
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What is your problem with this lady or Right To Try? Why are you so hell bent on disproving her claims? It’s my understanding that many companies still prefer individuals seek FDA approval to use specific drugs, on a case by case basis.
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Great question. I am very glad that Ms. Harp got access to medication and that she's in good health. My issue is that this apparently did not happen via
#RightToTry and claiming that it did is false. RTT was passed on a false basis that the existing compassionate access system... - Show replies
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