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jeremycsnyder's profile
Jeremy Snyder
Jeremy Snyder
Jeremy Snyder
@jeremycsnyder

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Jeremy Snyder

@jeremycsnyder

Professor @FHS_SFU @SFU. Bioethics, public health ethics, crowdfunding. Exploiting Hope https://global.oup.com/academic/product/exploiting-hope-9780197501252 …

Vancouver, BC
sfu.ca/fhs/about/peop…
Joined July 2009

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    Jeremy Snyder‏ @jeremycsnyder 18 Jun 2019

    Jeremy Snyder Retweeted

    THREAD: Last week @realDonaldTrump tweeted about this @foxandfriends interview with @NatalieJHarp. Ms. Harp is being held up as an example of how #RightToTry is working and saving lives. 1/ https://twitter.com/realDonaldTrump/status/1139485397858291713 …

    Jeremy Snyder added,

    This Tweet is unavailable.
    10:51 AM - 18 Jun 2019
    • 9 Retweets
    • 13 Likes
    • Nobu Ro Nirody Jeremy Abbate ☕️ Ali Mortazavi Kelli Stewart Deanna MacNeil Tom Mathies Rusty Montgomery Mary Chris Jaklevic
    2 replies 9 retweets 13 likes
      1. New conversation
      2. Jeremy Snyder‏ @jeremycsnyder 18 Jun 2019

        Ms. Harp stated that she has a rare bone cancer and was mistakenly given sterile water via IV while being care for in hospital. She says she was given palliative options and instructions to end her life but not offered curative care. https://www.foxnews.com/politics/millennial-cancer-joe-biden-trump-right-try-saved-life … 2/

        1 reply 0 retweets 1 like
        Show this thread
      3. Jeremy Snyder‏ @jeremycsnyder 18 Jun 2019

        This story has received attention beyond the presidential tweet and @foxandfriends interview, including claims that "Trump signing Right to Try last year helped her experiment with treatment". https://www.dailymail.co.uk/news/article-7148155/Cancer-fighter-slams-Biden-saying-hell-cure-disease-elected-says-Trump-kept-alive.html … 3/

        1 reply 0 retweets 1 like
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      4. Jeremy Snyder‏ @jeremycsnyder 18 Jun 2019

        But is this true? @NatalieJHarp states in her original story about her experience that after initially failing two chemotherapies for her cancer, her oncologist gave her "an FDA-approved immunotherapy drug for an unapproved use" that worked for her. https://www.linkedin.com/pulse/im-living-proof-party-healthcare-trumps-natalie-harp-mba?articleId=6544639370236960769#comments-6544639370236960769&trk=public_profile_post … 4/

        1 reply 3 retweets 2 likes
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      5. Jeremy Snyder‏ @jeremycsnyder 18 Jun 2019

        But that's not what #RightToTry does. It circumvents the FDA to allow access to non-FDA approved investigational drugs that have cleared phase I trials and remain under investigation. It isn't for gaining access to off-label use. https://www.fda.gov/patients/learn-about-expanded-access-and-other-treatment-options/right-try … 5/

        1 reply 3 retweets 10 likes
        Show this thread
      6. Jeremy Snyder‏ @jeremycsnyder 18 Jun 2019

        Given that this story is being used to promote #RightToTry as a success, it is really important whether it was needed and used to give Ms. Harp access to treatment. But I haven't seen any news coverage questioning or confirming her version of events. Am I missing something? 6/

        3 replies 4 retweets 7 likes
        Show this thread
      7. Jeremy Snyder‏ @jeremycsnyder 18 Jun 2019

        I'd be grateful for others' perspectives. @ABatemanHouse @HollyLynchez @ArthurCaplan @NicholasFlorko @pzettler @kellyfolkers @SteveJoffe

        4 replies 0 retweets 6 likes
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      8. Jeremy Snyder‏ @jeremycsnyder 18 Jun 2019

        And on it goes: ""Glad to see legislation I championed in the House helping our fellow Americans,” Congressman Brooks said. ..."Natalie Harp, who has battled stage 2 bone cancer for the majority of her life, is benefitting directly from Right to Try. ”"https://www.alreporter.com/2019/06/18/brooks-says-that-right-to-try-law-is-benefiting-people-fighting-terminal-illness/ …

        1 reply 0 retweets 3 likes
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      9. Jeremy Snyder‏ @jeremycsnyder 18 Jun 2019

        And again as @realDonaldTrump announces his 2020 candidacy for President: https://www.c-span.org/video/?c4803435/trump-rtt …

        0 replies 0 retweets 0 likes
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      10. End of conversation
      1. New conversation
      2. Susie Keeton‏ @TheKeetons 27 Jun 2019
        Replying to @jeremycsnyder @realDonaldTrump and

        What is your problem with this lady or Right To Try? Why are you so hell bent on disproving her claims? It’s my understanding that many companies still prefer individuals seek FDA approval to use specific drugs, on a case by case basis.

        1 reply 0 retweets 0 likes
      3. Jeremy Snyder‏ @jeremycsnyder 27 Jun 2019
        Replying to @TheKeetons @realDonaldTrump and

        Great question. I am very glad that Ms. Harp got access to medication and that she's in good health. My issue is that this apparently did not happen via #RightToTry and claiming that it did is false. RTT was passed on a false basis that the existing compassionate access system...

        1 reply 0 retweets 0 likes
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