Jennifer Brea  Ovjeren akaunt

@jenbrea

Filmmaker . Tweets cinema, disability and occasionally screams from bed. Wife of . /

Los Angeles, CA
Vrijeme pridruživanja: srpanj 2008.

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  1. Prikvačeni tweet

    This is preliminary data from 234 patients enrolled consecutively at a clinic in Sweden. This same team is currently undertaking a more extensive MRI study comparing patients and controls, imaging to include supine brain/spine MRI and upright flex/ext MRI at Medserena.

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  2. Utah is one of the few states in the country where I feel well. Hope that lasts.

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  3. proslijedio/la je Tweet
    6. velj

    This is a harrowing example of what could happen in the reassessment process currently being considered by the US Social Security Administration.

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  4. proslijedio/la je Tweet

    Immeasurable gratitude to the IFMCA for the 3 soundtrack award nominations, including my first ever for FILM COMPOSER OF THE YEAR. I can’t believe my eyes seeing my name listed alongside Desplat, Hildur, Thomas Newman, and John Williams. Wow!

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  5. You can check it out here: (behind a firewall)

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  6. So excited to be doing a Q&A with Megan Moodie February 19th. She wrote a beautiful and incisive review of for

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  7. proslijedio/la je Tweet
    prije 19 sati
    Odgovor korisniku/ci

    It surprises me every time I read things like this yet I’ve read so many it really shouldn’t anymore! The fact that he was diagnosed with ME and has PEM!! As I was describing my symptoms to my physio he said how similar they were to patients with whiplash.

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  8. I remember reading about this incredible story, now a book!

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  9. proslijedio/la je Tweet
    5. velj

    6/ The rate for patients is nearly 7x higher than the general population Not surprisingly, the level of disability, loss of quality of life, loss of employment, the social disconnection can be devastating

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  10. proslijedio/la je Tweet
    5. velj

    5/ The quality of life for patients is measurably worse than patients with other serious diseases/illnesses including cancer (all), stroke, lung diseases such as COPD, renal failure and heart attack

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  11. proslijedio/la je Tweet
    5. velj

    4/ Many ME/CFS patients are too sick to work is so disabling that only ~13% of patients are able to maintain full-time employment (FTE) compared to 70% FTE prior to disease

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    5. velj

    3/ ~25% of patients are housebound or bedbound..... ....sometimes for decades! That means no work, no vacations, no social life, lost time, lost goals, lost relationships.....

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  13. proslijedio/la je Tweet
    5. velj

    2/ Full recovery from is rare The median recovery rate from multiple published studies is 3-7% (just 1 paper linked below)

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  15. (And yes, this person’s penultimate diagnosis was , yes they had PEM, yes they saw and were diagnosed by experts.)

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  16. I thought I was building toward a statement or question. I think I am just digitally throwing my hands up. Sorting out this mess is going to take a very long time.

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  17. If patients are be told their ABC accident or XYZ DIAGNOSED Chiari, stenosis, etc “couldn’t possibly be causing their symptoms”...

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  18. But if doctors are missing CCI even in cases where yes, there was an obvious physical trauma?

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  19. I get the idea that maybe infection-related acute or chronic inflammation could cause instability is a bit radical (although there is precedent). I’ve heard a number of researchers compare to TBI or trauma without the trauma.

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  20. Instead he was treated for chronic Lyme, viral infections, etc etc. Like me, he was a Valcyte responder. Since his fusion, his QoL has improved “4000%” and it is still early days.

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  21. By the time he developed severe symptoms, enough time had passed since the initial trauma, no one made the connection.

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