My new article about living with #MECFS and overcoming with creativity and bbc.co.uk/news/stories-4 #Prince #PRINCE4EVER #purplearmy #princearmy
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Mobeen - thank you for writing this article. So beautiful and so sad at the same time.
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I used to have a successful business but lost everything because of CFS. There is a treatment which could pretty much cure me but the NHS and DWP won't pay for it, even though it's much cheaper than my benefits. So I'll probably be a claimant for the rest of my life.
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Thank you for one of the most sensible articles on ME I have seen published for a long time. So sorry to hear your so sorry your condition is not improving, there are many in the same position sadly. !7 years for myself.
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Great article, and the photos are moving. Can I quibble with your use of the word "overcoming"? To say we "overcome" our illness is in some way to erase our experience of living with it, uncured. We need to assert our worth in the face of NOT "overcoming" it.
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Good point; sad that articles on achievements of MEeps at the least border on disability porn; but on the other hand definitely great article and kudos to Azhar for using terms ME and neuroimmune, and no psychobabble.
Thank you for this wonderful article. As someone who has fallen into writing since becoming housebound with ME, I related. This is perhaps the first time a piece has called ME what it is - a neuroimmune condition. Not a whiff of yuppy flu in it. Words matter: thank you.
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I’m grateful to see a BBC article callling ME “neuroimmune”, especially in the sub-heading. I commend you for that at the very least. I’m not so happy at the mention of people getting well from ME, though I understand it was a quote #MyalgicEncephalomyelitis
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