Recognition needed for #MyalgicE or ME. Damaging, debilitating but hidden illness not recognised by or many agencies.
Conversation
It is a horrible illness and I speak as one who has had it - lost a year of my 20s - but been very blessed to have recovered
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Thank you from your local ME specialist. Confusion continues as some lump ME with chronic fatigue. Bad science that costs £££.
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This isn't true: nice.org.uk/guidance/cg53 - and frankly, a politician appearing to attempt to influence NICE is not a good look.
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Thanks, Vince. Not just proper recognition but also massive investment in biomedical ME research after decades of neglect and mistreatment.
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Revognißed for 15-20 years. Best not referred to as myalgic encephalomyelitis as no evidence of inflammation. Chr fatigue syndrome
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