Our Board of Trustees on GET, CBT and PACE: read full statement at actionforme.org.uk/news/board-of-
Conversation
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#CFS I invented the pacing method of treating CFS & those who don't pay me for my research are time wasting fools users.chariot.net.au/~posture/#Famo
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I think the whole board of trustees should resign. They show no understanding of issues or ability to improve things for people with ME
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A long way behind the curve if these conclusions have only just been reached
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'signing now will have no impact' really?? It has an impact on your public image of standing up for #pwme and against bad science
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I am afraid that that is just not good enough,You should have signed the letter! Patients rely on you to support them,you are failing them
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4 chronic fatigue patient CBT/GET might work. Not for ME. So no need to keep that door open. U keep conflating CF with ME. Like Crawley 👎
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The focus on PACE = not preventing things 2 move forward. It's a great example for why these treatments do not work. Opens many new doors
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#PACEtrial needs to be retracted as it still influences public health policy and is still referenced in research articles, leading to bias
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Scrutinising discredited PACE trial's holding back ME research??? It's like saying reporting burglary holds back police investigating crime
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