Connected: organized a conference in Cook Islands w Per Fink, Trudie Chalder, Michael Sharpe, John Weinman #mecfs
Conversation
a small but highly vocal and well-organised group of researchers who oppose patients organising and communicating their experience of ME/CFS
im looking to compile cases of fatal ME where the relatives were lent on by the authorities to keep quiet about damage discovered at autopsy
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Money power + vested interest; what happens to severely ill patients has been totally irrelevant for decades #PACEtrial #PinocchioPsychiatry
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