Thx for interesting & considered piece on ME/CFS. Lil typo, it is Mady Hornig at Columbia U (not Mads).
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Is there a story behind how the piece came about? What prompted if you don't mind me asking?
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I have a very close friend who went down with CFS at the end of 2014. She's still struggling to get her life back together
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Sorry to hear your friend is sick, but how lucky to know a writer :)
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PACE authors "rebranded" ME disease using broader CFS defs, excluding the severe entirely, leaving many abandoned.
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Frustrating that even despite real concern from prominent researchers, PACE refuse to release (publicly funded) trial data.
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Which obviously makes one wonder, is their focus on their reputations (& possibly conflicts) or on the truth & best treatments?

