Myalgic encephalomyelitis was first recorded in 1934 in Los Angeles after an outbreak of atypical polio. It has taken nearly a century and #LongCovid to "get needed attention"
sfchronicle.com/health/article #mecfs
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Dr. Topol, you are very forward looking physician. Please help. So many young people are chained to their bed, lying in darkness, their lives utterly felled. Thank you.
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We get Is ME/CFS finally getting break articles every couple months for decades. To this day, 99% of MDs respond like the below to both ME/CFS & LC. I hear patients go to LC clinics & told to do GET, others get "fired". ME/CFS has to self-treat via Twitter
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This was my cardiologist. This WAS my friend. #LongCovid has destroyed my heath, my friendships and now it’s coming for my family.
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Meanwhile in Germany, the association for neurology discusses if #LongCovid ist "fact or fiction" - you can imagine, how they handle #mecfs.
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ALT
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Patience and the post-infectious will relegate psychosomatic to fiction
So can we actually make progress on these syndromes. I’m 34 and to think I will be like this until the day I die is gut wrenching.
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Please stop using and merging the Long Covid community with CFS. Let’s wait for the research to be completed. Most long covid is not CFS.
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Thank you for elevating this message, Eric. Just dropping this here for anyone’s FYI to help with context.
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Five studies estimating the prevalence of ME/CFS within #LongCovid:
1) nslational-medicine.biomedcentral.com/articles/10.11, 47%
2) sciencedirect.com/science/articl, 46%
3) medrxiv.org/content/10.110, 45%
4) pubmed.ncbi.nlm.nih.gov/35079817/, 59%
5) medrxiv.org/content/10.110, 43%
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Because people tell us to "suck it up" or accuse of "making it up" instead of believing a real problem or illness exists. It's not hypochondriasis. It's pain, exhaustion and mental health impacts from a largely unsympathetic society.
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