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Linda_T 🇨🇦
@t7_linda
from what I understand though from following #Nightengales is that ME pem is a different level. Some unable to even brush their teeth. Whereas we can function, we just get fatigued very easily. We rest & recover. But they can't recover if they go outside of energy envelope
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Linda_T 🇨🇦
@t7_linda
Replying to
@t7_linda
and
@jenbrea
For me, that's how I tell us apart. Like - I don't think someone with EDS alone could end up like Whitney, unable to speak/eat etc. I think you need ME/CFS for that level of PEM. No? I'm open for discussion I know it won't be a fight here 🤣
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Linda_T 🇨🇦
@t7_linda
not at all Bob, I appreciate your perspective always. The spoon theory is a good point? Are some mixing the two up I wonder? spoons and PEM? I dont think pts with ME can use spoons like we can. but not sure tbh
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Grace
@gracearmagh
Maybe your wife has ME also?! Have you watched Unrest to get a better perspective on what it’s like? Lots of science in the film as well
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Jennifer Brea🦒
@jenbrea
Replying to
@jenbrea
and
@gracearmagh
Since these are both clinical diagnoses, it is going to be very difficult to disambiguate what we really mean when we say a person has one or the other v. two co-morbid conditions when they meet both criteria until we do actual science.
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