Without #MyalgicE patients & patient organisations, the issue of harms from graded activity & exercise programmes would likely have been ignored.
The monitoring of harms with nonpharmacological interventions is not nearly as rigourous as with drugs e.g. (UK) Yellow Card Scheme
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Folk need to realise the gravity of this information. "Harms" doesn't just mean that someone stubbed their toe or got a little winded. "Harms" can mean irreversibly, immeasurably damaged to the point of it being a life altering event. And yet, NO ACCOUNTABILITY . . . !
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Rigorous monitoring is so so important, and can easily be missed without it
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