Conversation
Just maybe there’s a very good reason for the pushback from patients? Cancer researchers, AIDs researchers don’t receive this.
1
1
28
Sadly very many researchers have to deal with this. And it is not 'pushback' - it is an attempt to suppress inconvenient research findings.
15
3
5
Show replies
Traumatizers like Sharpe and Wessely often receive push back from their victims.
I would expect more as they are exposed, that's why this article was orchestrated by them.
What is noteworthy, is how the medical institutions continue to protect and promote medical harm.
1
14
58
Actually it’s hundreds of clever scientists from top unis, a unanimous cross party coalition of UK MPs, and almost every ME charity globally that are critical of the PACE trial. Since when is robust scientific disagreement abuse? It should be welcomed. Patients deserve better.
1
7
61
The elephant in the room in this debate is that the vast majority of patients who have received PACE style treatment ( GET etc) are mostly still sick or even sicker. In other words it doesn’t work and can be harmful.
4
42
Hi
When Kate Kelland interviewed me for this piece, I took notes.
Perhaps you might like to read them: app.box.com/s/udxzmmznsb8d
Kind regards,
Paul
4
12
43
Great article? All depends on your point of view. Weight of evidence points to this being a very biased article.Fact is, currently #mecfs research is actually expanding rapidly. Many of the current researchers describe pts as engaged, which is definitely at odds with this article
2
4
19
Nonsence. The IRT judgement panel found claims of activist behaviour ‘grossly exaggerated’. Further claims presented were in fact ‘wild speculation’, lacking in imparitiality with no evidence to support any claims. Panel found NO THREATS to researchers/participants.
1
1
28
Did you work on the PACE trial? If so it is perhaps time to offer patients an apology?
1
1
29
Yes she did. I wouldn't hold my breath for an apology to patients though
3
26










