People with #MyalgicE or #CFS were asked 2 qualitative questions: What term would you use for what is commonly referred to as post-exertional malaise? How would you describe this term to someone?
Results from a large international survey by .
researchgate.net/publication/32
Conversation
Having spent my youth as a car-obsessed suburban American teen-ager I can't help but think "I just ran out of gas. Totally."
3
Doesn’t attempt to measure delay after exercise - one of the most peculiar ( ?diagnostic) & characteristic features of PEM compared with true fatigue.
I got one Post Activity Increase in New or Severity of Symptoms PAINSS for short. Because it is a PAIN to explain and to cope with by the suffer, for the doctor to understand and for the family to deal with on every level
1
3
Interestingly I wrote a blog about this yesterday. My term is THE AFTERSHOCK!
2
5
Payback and crash are my most used explanation words. Simply because they are not used in normal conversations about lighter ailments. So it gives people a better understanding of what I am experiencing. Shut down and food coma is also something I would use







