Rezultati pretraživanja
  1. 5. pro 2019.
  2. 24. lis 2019.

    We had a fantastic in Indiana on the 13th! What a beautiful fall day, filled with friends, supporters, and new connections. Thank you, Indiana!

  3. 19. lis 2019.

    Tobias Ehrensperger explains the benefits of our Voith Electrical Drive System. At Europe in Brussels you have the chance to experience our in live operation during a test drive.

  4. 7. kol 2019.

    It’s time! July was the beginning of the busy conference season, join me in Houston for the Marfan conference, lots of meetings in between and then see all the prep it took to get ready for our biggest conference to date in Nashville!

  5. 4. kol 2019.

    A few members of the community/family getting together after the meeting earlier today! Love these people like crazy.

  6. 31. srp 2019.

    I don’t know if I could be more excited about all the things happening this week and weekend for and !

  7. 29. srp 2019.

    Webinar: Taking Care of Your Presented by Dr. Alan Braverman, Alumni Endowed Professor in Cardiovascular Diseases and Professor of Medicine, and Director, Marfan Syndrome Clinic,

  8. 19. srp 2019.

    Big news! 1. I am back on the exercise train! 2. I am getting married!! 3. The webinar from July 10th is up at

  9. 8. srp 2019.

    How have you handled it when you meet someone who you think has ? Do you tell them and how do you do it? Katie discusses this difficulty in her vlog

  10. Katie who lives with and Poppy who lives with speak with about living with rarer types of EDS:

  11. 21. ožu 2019.

    In case you missed it: This webinar is all about . Thank you and Shaine Morris!

  12. 16. kol 2018.

    Backpack Health empowers EDS community, providing tools to make health management easier, eliminate need for paperwork binders - 50% off for community

  13. 31. srp 2018.

    Reflections for the weekend- My Life with vEDS (July 39, 2018) via .

  14. 1. svi 2018.

    I’ve done a challenge for ’s fund-raising campaign! I nominate & to do a FiveByFive! You can donate at: and why not do a FiveByFive!!!

    Prikaži ovu nit
  15. 22. srp 2016.

    Take a look at the virtual book cover of ": The Journey Begins" coming soon

  16. Vascular Ehlers-Danlos syndrome (vEDS) is a rare type of EDS that can be life limiting

  17. Pls watch & RT short video living with life threatening

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