-
Professor Rodney Graham saying it as it is.. A huge loss to the NHS and patients with
#EhlersDanlosSyndrome#HSD#vEDS#hEDS who will never be able to experiencehis clinical brilliance.#PatientExperiencepic.twitter.com/t4GuUXGeZE
-
Major surgery tomorrow. Spread awareness.
#EDS#Elhersdanlossyndrome#vEDS#VascularEhlersDanlosSyndromepic.twitter.com/dn42LLeHdT
-
Join us for a webinar on Pregnancy AND Women's Health in VEDS! February 13, 6 pm EST. This webinar will be presented by Melissa Russo, MD, Brown University. Register here to attend live or be among the first to receive the recording: https://bit.ly/2OhTKUp
#VEDS#VascularEDSpic.twitter.com/Nsh4nMw7xx
-
Please consider what we could accomplish with a simple, inclusive, marching banner, so every new cousin-condition can join us without redesign.
#CTDsurvivors#MarfanSyndrome#EhlersDanlosSyndrome#LoeysDietzSyndrome#VEDS#CTD@marfanfdn https://thevedsmovement.org/ pic.twitter.com/JullOKUCaw
-
Your Valentine's read! "This book should be a movie..." - Amazon reviewer Rarity, by D.A. Roach http://amzn.com/B00YTETSGK
#YA#lovestory#romance#veds#raiseawareness#raredisorder#yaromance#yaread#book#yabook… https://www.instagram.com/p/B8MB1-IgPLo/?igshid=x5pzckliet8i … -
Have
#VEDS? Join us at 6 pm EST today for our VEDS Connect virtual support group.#VascularEDS https://bit.ly/3baewz3 pic.twitter.com/iMaONp5k4m
-
So you knew cipro could cause Achilles tendon rupture? Collagen in Achilles tendon & Aorta too. So Marfan get aortic aneurysm overtime but if you gave
#Fluoroquinolones#ciprofloxacin the risk of dissection increases. Same with#EDS. Worse with#vEDS happens with#hEDS too -
Given my level of fatigue and my fuck up quotient I make a terrible friend but would probably make an amusing podcast. Or studied for behavioral science to start and i always thought if I still had
#veds but was rich, I could at least enjoy the flexible/soft skin/eternal youthPrikaži ovu nit -
from 2012 on, i poured everything into pushing for a combined education/referral/fundraising/logo effort as
#CTDsurvivors . i'm glad someone finally got through on the same idea.#EhlersDanlosSyndrome#MarfanSyndrome#LoeysDietzSyndrome#VEDS#CTDhttps://www.marfan.org/about-us/news/2019/12/02/veds-movement-launches-thevedsmovementorg … -
Hey, I'm sorry to hear this, also am just wondering if you have also been tested for
#vEDS? X -
July 31-August 2, 2020, will see our first
#vascularEDS (#vEDS) family weekend, partnering with@CampJoyOhio in Cincinnati, USA! The Ehlers-Danlos Society has secured a grant to fund those in the community with a “pay what you can afford” program. https://buff.ly/2A0aPdS pic.twitter.com/PlWEL6Li34
-
Join us for a webinar on Pregnancy and VEDS! February 13, 6 pm EST. This webinar will be presented by Melissa Russo, MD, Brown University. Register here to attend live or be among the first to receive the recording: https://bit.ly/2OhTKUp
#VEDS#VascularEDSpic.twitter.com/SD69Tke8On
-
We now have an #AffiliatedPartner from#Malta
- Mater Dei Hospital! Welcome to Drs. @MaryanneCaruana and@kevincas0 who will#collaborate with the Heritable Thoracic#AorticDiseases#HTAD and#MSA#vEDS WGs!#Marfan#ERNeu
https://vascern.eu/new-vascern-affiliated-partner-from-malta/ … @judbacke@robert_leemapic.twitter.com/6Jhlc1TlPm
-
No, you're bored after literal years of bedrest. You are. Anyway.
#imreadytoorder#selfie#veds https://www.instagram.com/p/B77CL3jpRma/?igshid=zqfr93zf2vck … -
#VEDS affects both men and women of all races and ethnic groups. The best estimates suggest about 1 in 40,000-50,000 people are affected, but many people do not know they have#VascularEDS#VEDSFastFactshttps://bit.ly/2uAz6rv -
"My name is Keegan from Lucasville Ohio and my victory is I have a strong support system from family and friends."
#MarfanVictoryChallenge Share your victory & spread awareness in Feb for#MarfanAwarenessMonth. http://bit.ly/2RQ8Wce#Marfansyndrome#LoeysDietz#VEDS pic.twitter.com/RH29LNWTeD
-
There are several studies currently enrolling patients with
#VEDS, including the@vEDSCollabo Natural History Study. Participating in a study is an important personal decision. What should you know before you make your decision? https://bit.ly/38KYglQ#VascularEDS -
Malang- Hum Sirf Apne Liye Jiyenge
#AdityaRoyKapur#DishaP#AnilK#KunalK#VedS http://bit.ly/2O4u4dH
Čini se da učitavanje traje već neko vrijeme.
Twitter je možda preopterećen ili ima kratkotrajnih poteškoća u radu. Pokušajte ponovno ili potražite dodatne informacije u odjeljku Status Twittera.