Rezultati pretraživanja
  1. 7. pro 2019.
  2. 28. velj 2017.

    For we want to raise awareness of & the , a cause very near to our hearts.

  3. 12. svi 2017.

    Don't forget to wear your finest shades of red today

  4. I have a rare disabling connective tissue disorder that I inherited from my mother. Raising awareness for these disorders is very important.

  5. 2. svi 2018.

    Animal models, best practices for patient care, and more on tap today at 2nd Scientific Meeting with ! Meetings like this and sharing data/experiences are how we make needed progress.

  6. 11. pro 2017.

    Learning about Vascular Ehlers-Danlos syndrome, thank you Annie Barlow for being amazing, honest, and inspirational.

  7. Got this tonight.... not only am I a medical zebra but having makes me a zebracorn....

  8. 8. pro 2011.

    Can I please ask all my friends to RT to raise awareness for in memory of Amanda Corbett a beautiful angel

  9. 3. svi 2017.
  10. 20. svi 2016.
  11. 1. ožu 2018.

    Can't sleep, this arctic weather isn't helping, have joint pain, chest pain, tmj, nerves going nuts, twitching. 😣

  12. 28. sij 2016.
  13. 28. velj 2015.

    Today is ! Join us as we battle a disease that affects 1 in 250,000,

  14. 11. svi 2016.

    Starting to get chest pain. 😢 You'd love a break from & just once.

  15. 28. velj 2017.
  16. 24. ožu 2015.

    I recently learned about syndrome. This terrible disease has taken way too many lives, even...

  17. 2. stu 2019.

    My Veins scare people , gives me zombie chest . My daughters birth almost killed me . My uterus was about to burst when they Cut me open. They called it a Uterine Window . Organ stretched so thin it was clear like Glass . I wish I coulda seen it .

  18. 5. pro 2019.
  19. 4. srp 2019.

    Happy 4th! Help us by retweeting this information to reach as many individuals with as possible. Follow us for updates.

  20. 2. svi 2017.

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