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La asociación de enfermos
#sindiagnostico,@obgdiagnostico, exige q les tengan en cuenta Tener una de las#EERR es un martirio, cuando además no tienes diagnóstico es desesperante, debemos luchar x este primer paso para tod@s#undiagnosed En@LaVanguardia https://www.lavanguardia.com/vida/20190819/464149422972/asociacion-de-enfermos-sin-diagnostico-clama-para-que-se-les-tenga-en-cuenta.html …pic.twitter.com/vQFufPfGKC
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'Having a child who is undiagnosed is a lonely situation to be in - in Nellie's first few years, we felt isolated and cut off from "normal" everyday life.' Read Nellie's family's experiences with an
#undiagnosed genetic condition here@SkyNews https://news.sky.com/story/our-journey-may-never-end-life-with-an-unknown-syndrome-11703264 …#ROARsomepic.twitter.com/qq0JE0PjUk
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The Parkes family share the story of their son, Charlie, who has an
#undiagnosed genetic condition. Read it here on@BBCNews: https://www.bbc.co.uk/news/uk-england-northamptonshire-48051026 …#ROARsome -
Today is Undiagnosed Day and we're spreading awareness!
@SWAN_UK#ROARsome#undiagnosed https://www.bbc.co.uk/news/uk-england-northamptonshire-48051026 … -
Nearly half of all children with cancer go undiagnosed and untreated
#children#undiagnosed#cancerhttps://www.theguardian.com/society/2019/feb/27/nearly-half-of-all-children-with-cancer-go-undiagnosed-and-untreated … -
#RareDisease#pulmonary#undiagnosed Thank you@LisaSandersmd for another great NY Times Diagnosis column He Thought He Just Had the Flu at First. Then His Heart Could Barely Pump.https://nyti.ms/2GSE9cs -
Great article on too few kids receiving support for
#ADHD. In particular girls often going#undiagnosed. 0.35% of UK girls under 18 are prescribed medication (1.5% of boys). Overall prevalence rate is 5.3%... https://www.theguardian.com/society/2018/oct/05/too-few-children-receiving-treatment-for-adhd-figures-suggest?CMP=Share_AndroidApp_Tweet … -
The Undiagnosed Diseases Network (UDN) works to improve & speed diagnosis of
#RareDiseases &#undiagnosed conditions. Check out a success story from phase 1 about a 10-year-old girl whose condition is no longer a mystery https://www.cnn.com/2017/12/18/health/avery-reilly-undiagnosed-diseases-network-profile/index.html …#UndiagnosedNIH -
We're looking forward to this new & unusual
@netflix series made in association with@nytimes called DIAGNOSIS airing in 2019. They share undiagnosed patient stories & ask for differential diagnoses! Here's Kamiyah's story#undiagnosed#diagnosis https://www.nytimes.com/interactive/2018/08/23/magazine/netflix-diagnosis-series-kamiyah.html …pic.twitter.com/ARWVVjqm1l -
DIAGNOSIS, a new medical mystery series from
@nytimes &@netflix, is looking for people who suffer from#undiagnosed medical conditions. Is this you? Share your story with diagnosissubmissions@gmail.com. More info: http://bit.ly/nytdiagnosis -
Watch last night's BBC South report on the
@SWAN_UK event in Oxford for families of#undiagnosed children, and how projects like#genomes100k are trying to find a diagnosis. From 3'40" http://socsi.in/3p6tP@GenomicsEngland@GeneticAll_UK -
Unambiguous win for Medicine & genomics & twist on
#undiagnosed Disease http://nyti.ms/2lsgoNB pic.twitter.com/bLBqPp87vG
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Although
#undiagnosed, Brody has a secondary diagnosis of#epilepsy A post that I wrote is on@HuffPostUK today *LRhttp://www.huffingtonpost.co.uk/laura-rutherford/how-do-i-know-if-its-a-se_b_16386216.html … -
#Undiagnosed Children's Day is tomorrow! Check out SWAN UK member, Alison Bloomer@HuffingtonPost@HuffPostBlog :http://ow.ly/4ncHi0 -
#Undiagnosed#ADHD in#girls can mean problems in adulthood:@DoronAlmagor &@kathellison. http://cbc.ca/1.3470433 pic.twitter.com/qejjwMLfEa
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Of all the reasons to study
#undiagnosed &#rarediseases, these are our top 5: http://irp.nih.gov/blog/post/2015/06/top-5-reasons-to-study-rare-and-undiagnosed-diseases …pic.twitter.com/Ua2JTtk8zd
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