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30 days ago Matt Hancock said yes to Orkambi & Symkevi. 30 days ago the CF battle of Britain was won, we now need to win the War on CF
#TrikaftaNext pic.twitter.com/o2PWRyZAo2
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This sounds encouraging... but ... was
@VertexPharma in the meeting?@VertexPharma YOU MUST PARTICIPATE in these meetings to ensure that the people who can benefit from your AMAZING#LifeChangingDrug#Trikafta will have it available to them in a TIMELY MANNER!#TrikaftaNEXT https://twitter.com/AlexRHorsley/status/1224375048963796992 … -
Great to hear this, another important step along the way...
#TrikaftaNext -
Interesting and glad to hear it was productive!!! Brilliant that there was a good attendance from the medical community! Thank u all
#trikaftanext -
A day later than hoped but we’ve got our Teddy home. Still a bit sore but recovering well. We can test the Port-a-car in a few days.
#CFLife#cysticfibrosis#Hero#trikaftaNext pic.twitter.com/06rCeBNydZ
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As always Paul, your support is invaluable. Thanks for replying to our community and I hope you’ll continue to work with us in our ongoing and continuing fight.
#TrikaftaNext#letsGetTrikafraDone


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Was a good meeting #trikaftanext UK needs these "highly effective modulators" asap! -
Some of our CysticFibrosis community campaigners fighting for the game changing
#Trikafta at a meeting in@cftrust@NickMedhurst@DavidRamCFT today to discuss strategy & plans ahead of EMA licensing of this vital drug
#TrikaftaNext#noOneLeftBehind@KateMarsh101@cazsparshottpic.twitter.com/OQnc4eqQS6 – mjesto: Cystic Fibrosis Trust
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@MattHancock please meet with them to discuss the best way forward#trikaftanext https://twitter.com/cftrust/status/1222876746116190208 …
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Come on uk people. Let’s fight for this Join campaign group on Facebook UK NEEDS
#TRIKAFTANEXT

pic.twitter.com/Hum9X1Cq9o
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@VertexPharma@MattHancock@NICEComms@NHSEngland@BorisJohnson this is my friend Karis. She desperately needs TRIKAFTA! Help to save her life. Help to stop her kids growing up without their amazing mum. You CAN do something!#trikaftanext#trikafta#trikaftanow#cysticfibrosis pic.twitter.com/BzHigzH7n6 -
Guess I'm following Jeremy Hunt again
. Chair of the health and social care select committee. #cysticfibrosis#trikafta#TrikaftaNext https://twitter.com/Jeremy_Hunt/status/1222602712010973184 … -
Thanks Louise. It’s down to a great team at the
@Daily_Express from top to bottom who all want health justice for#cysticfibrosis sufferers - as well as those with#pku who desperately need#kuvan#dailyexpresscrusade4cf#trikaftanext https://twitter.com/korkoza/status/1222578666963636224 … -
To every person who shared petitions, retweeted posts, attended events, donated to
@cftrust...today is a huge day and it's thanks to *you*! You have no idea what this little box means to our family. Thank you. Here's to the next chapter

#cysticfibrosis#trikaftanext pic.twitter.com/pe3Nh9K09p
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Courtney, that’s brilliant. Would be fab if you could share your story on our UK Needs
#TrikaftaNext Facebook page Also great that your hospital are being so supportive as many are not
ThankYou
#Trikafta#NoOneLeftBehind@ChrisMRiches@Daily_Express@cftrust@MattHancock pic.twitter.com/bAgKg12sdK
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That’s amazing Andrew!!! So happy for you and your family.
#trikaftanext@Daily_Express#dailyexpresscrusade4cf@cftrust -
Come on
@VertexPharma@FrimleyHealth For the life of Darren just get on the
NOW
get the admin
deliver



Staff

are ready to help
PLEASE hurry up
Surely nothing can be more important
#SaveCFlives#TrikaftaNext#DarrenCantWaite .@MattHancock .@pmrleahy pic.twitter.com/E7akryOCGS
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Checkout Mr independent doing his own nebs. Sadly this is a scene we do a minimum of four times a day. With
#Trikafta scenes like this could be hugely minimised. Praying for#TrikaftaNext.#CFLife#cysticfibrosis#life#breathepic.twitter.com/h8ftvP0uCt
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