Rezultati pretraživanja
  1. 4. velj

    It’s fucking heartbreaking seeing certain people with at end stage pleading for access to . It should be a no brainer. But what’s even more heartbreaking is the fact that access shouldn’t be granted at this stage. It’s almost too late & the damage is done

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  2. 18. sij

    Thankyou and everyone else who helped as get for Ayden ❤️ VERTEX SAID YES!!! ❤️❤️❤️

  3. 11. sij

    This how much medicine means 2 me .. Bcuz I am willing to take the risks so .. 2 all of ya CFers don’t quit on the things u lv bcuz u’ll live once make it worthy ... And please we need 2 reach KSA 🔁 so that our voice is reached 2 the outside

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  4. 28. sij

    We got the call! has been granted compassionate grounds for What a victory! Now we wait for the drug. Will keep u posted! Thx words cannot express our gratitude. Thx for supporting us, ur all amazing!

  5. 16. sij

    Ayden is an amazing young man who has a chance of living if given your medication, he is deteriorating quickly & this family need their son, please

  6. 25. stu 2019.

    Day one of Trikafta! I am going to kick this disease to the curb and live the life I’ve always dreamt of!

  7. prije 16 sati
  8. prije 17 sati
  9. prije 19 sati
    Odgovor korisniku/ci

    My son has been lucky enough to have and I can't begin to tell you the difference it has made to him. His lung function has gone from 30% to 84% he can now breathe normally for the first time in over 10 years. And in time for him and his wife and their baby due any day

  10. Absolutely over the moon !! Boxing legend! Former world Champion ! ! Will be putting the football boots on this sunday at Seaview and taking part in Fight For charity football match ! . No words can describe how much this means to me!

  11. prije 22 sata
  12. 4. velj
    Odgovor korisnicima i sljedećem broju korisnika:
  13. 4. velj

    . pledges to act fast on deal once it's licensed & actress pleads with to give , who has just 16% lung function, trikafta on compassionate grounds to see kids grow up.

  14. 4. velj
    Odgovor korisnicima i sljedećem broju korisnika:

    story in today. Pls get her as soon as possible. Also in paper, pledges to act fast on drug when it is licensed this summer in the UK.

  15. 4. velj

    Chantelle is 23, she needs the life saving med by Chantelle lives in Truro N.S., please retweet, share & tag anyone you know that may be able to help

    Ovo je potencijalno osjetljiv multimedijski sadržaj. Saznajte više
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  16. 4. velj

    1 month of done💪 Every sachet that's opened still makes me feel incredibly greatful/emotional. Never will we forget the momentous effort it took. Nor will I forget the other families still fighting to save thier children & get access to meds. only the best

  17. 3. velj

    When I was born, 12 years ago, there was no medicine that linked me to a long and quality life. Now, this medicine already exists, I just need the laboratory submit the registration of The #Anvisa#RegistraVertex#FibroseCística

  18. 2. velj

    YOU GUYS. Big. 👏🏼Things. 👏🏼 Are. 👏🏼Happening. 👏🏼 Today was my first day taking Trikafta, a monumental advancement in treating the underlying symptoms of Cystic Fibrosis. This is a game changer! Today I am thankful, and feeling so blessed! ✨

  19. 1. velj

    ready for new beginnings!!

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