Rezultati pretraživanja
  1. 29. velj 2016.

    Jeans for genes! We care about

  2. 28. velj 2016.

    Wear jeans tomorrow to join the Jeans for Genes campaign and support those who struggle with rare disease

  3. 16. ruj 2018.

    Spent the morning at ChickenNPickle for a fabulous RareKC event. I ❤️ the people in KC and their support for the rare community.

  4. 4. ožu 2019.

    excited to be hosting Summit 2019 today

  5. 5. ožu 2018.

    Kicking off the third annual RareKC town hall-changing the world w commitment to research

  6. 20. ruj 2019.

    Kelly Ranallo presenting the Global Genes Rare Champion of Hope in Collaboration Research Award to the International Myositis Assessment and Clinical Studies Group

  7. 29. velj 2016.

    Breakfast for . An event for supporting rare disease awareness. "Rare is common!"

  8. 5. ožu 2018.

    Dr Carol Saunders describing the impact genomic testing can have on rare diseases ...without genetic testing, an accurate diagnosis takes an average of 6 years.

  9. 4. ožu 2019.

    Spent the day at !! Let's do this!!

  10. 29. velj 2016.

    Thank you to everyone who participated in we really appreciate it!! 👖👖

  11. 22. kol 2018.

    Hey Kansas City folks- consider attending this fun event to support RareKC. Did you know there are almost 7000 rare diseases, affecting more than 30 million Americans (including my daughter)? Please share, RT, come to the event!

  12. 5. ožu 2018.

    A lot of powerful information being shared between researchers and their patients during the morning panel session.

  13. 16. ruj 2018.

    Beautiful sunrise to start a great day at Chick n’ Pickle for !

  14. hey salvy! Can we get a retweet for Florence and a local KC family spreading awareness?

  15. 19. velj 2016.

    Stop by our photo booth and post a pic with "" and "" for a chance to win a prize!

  16. 29. velj 2016.

    Today is not only leap day, it's WORLD RARE DISEASE DAY. We're painting KC denim blue today. ...

  17. 19. velj 2016.

    Come to the SHARE photo booth on the south ramp during all lunches and post a pic!!

  18. During this month of gratitude, Athleta Leawood was honored to host a donation based Giving and Gratitude event for the Myasthenia Gravis Association.

  19. 29. velj 2016.

    1st year DPT students support Day by wearing blue jeans to raise awareness for rare diseases!

  20. 4. ožu 2019.

    The Ridenour family talking about their rare journey. Theo is making sure they get it right.

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