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Jeans for genes! We care about
#RareDiseaseDay#RareKC pic.twitter.com/21FmmhwICN
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Wear jeans tomorrow to join the Jeans for Genes campaign and support those who struggle with rare disease
#CareAboutRare#RareKC@bvnwnews -
Spent the morning at ChickenNPickle for a fabulous RareKC event. I
the people in KC and their support for the rare community. #rarekc -
@RareKC excited to be hosting Summit 2019 today#rarekcsummit#rarekc -
Kicking off the third annual RareKC town hall-changing the world w commitment to research
#rarekc pic.twitter.com/6ICOMaJUL1
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Kelly Ranallo presenting the Global Genes Rare Champion of Hope in Collaboration Research Award to the International Myositis Assessment and Clinical Studies Group
#2019GGSUMMIT#rarekc pic.twitter.com/4ZklUJhc4z
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Breakfast
@KauffmanFDN for#rarekc. An event for supporting rare disease awareness. "Rare is common!" pic.twitter.com/cAnjm8LiXM
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Dr Carol Saunders
@ChildrensMercy describing the impact genomic testing can have on rare diseases#RareKC ...without genetic testing, an accurate diagnosis takes an average of 6 years. pic.twitter.com/JPqTRCOZbB
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Spent the day at
#rarekc!! Let's do this!! -
Thank you to everyone who participated in
#jeansfoegenes we really appreciate it!!@RareKC

#RareKC pic.twitter.com/XIzZo3mcOX
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Hey Kansas City folks- consider attending this fun event to support RareKC. Did you know there are almost 7000 rare diseases, affecting more than 30 million Americans (including my daughter)? Please share, RT, come to the event!
#RareDisease#RareKC http://www.rarekc.org/events.html -
A lot of powerful information being shared between researchers and their patients during the morning panel session.
#rarekc pic.twitter.com/E34FOAdEYK
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Beautiful sunrise to start a great day at Chick n’ Pickle for
@RareKC !#reachforrare#rarekc pic.twitter.com/2fdA9CCaMy
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@SalvadorPerez15 hey salvy! Can we get a retweet for Florence and a local KC family spreading awareness? https://vimeo.com/156850800#RareKC -
Stop by our photo booth and post a pic with "
#smejeans4genes" and "#RareKC" for a chance to win a prize! pic.twitter.com/9iZFNtR1Nb
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Today is not only leap day, it's WORLD RARE DISEASE DAY. We're painting KC denim blue today.
#rarekc... http://fb.me/7dxflfo0b -
Come to the SHARE photo booth on the south ramp during all lunches and post a pic!!
#smejeans4genes#RareKC pic.twitter.com/ddrdnqdzLV
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During this month of gratitude, Athleta Leawood was honored to host a donation based Giving and Gratitude event for the Myasthenia Gravis Association.
@MGATripleCrown#careaboutrare#rarekc pic.twitter.com/DFQbI68R8O
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1st year DPT students support
#RareKC Day by wearing blue jeans to raise awareness for rare diseases! http://fb.me/3ucL755rI -
The Ridenour family talking about their rare journey. Theo is making sure they get it right.
#RareKCSummit#rareKC pic.twitter.com/HfiniXyf2B
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