Rezultati pretraživanja
  1. Waiting to go down for major surgeries and my biggest fear? That they haven’t yet done my med history properly and someone will think they know it all and won’t listen enough to keep me safe.

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  2. 3. lis 2019.
    Odgovor korisniku/ci

    Totally with you on this one, my mutations indicated a high risk for at least 6 illnesses, some of which are , all of which I have. I was totally mind blown when I got my results.

  3. The only reason that I don't go to the hospital to get excused from class is because the hospital can't help me anyway.

  4. 5. ruj 2013.

    . We deserve research/charities/notice Where are the shops selling for a collective rareillnesses charity?

  5. 27. velj 2018.

    this is why the NHS should free Alfie Evans to a healthcare provider of the parents choice not end his life American Healthcare and the NHS

  6. 8. lip 2017.

    In 20% of the cases are due to associated factors, such as nutrician, enviroment and infection.

  7. 11. ožu 2013.

    Anyone who suffers from Cyclic Vomiting Syndrome, do you find it difficult to work? What are you doing for treatment?

  8. 1 million euros for into people who have survived being in a . Neurologist Prof. Steven Laureys has been awarded the Generet Prize for Research into Rare Diseases.

  9. joint venture looks for new uses for drug molecules. Focus will be on new therapies for .

  10. 30. svi 2011.

    Thanks for follow www.livingwithvwd.org www.bensfriends.org www.livingwithataxia.org

  11. 28. velj 2019.

    This tweet is dedicated to those who suffer daily from . For all those who and with , we want to raise this and for a to end disease.

  12. 9. svi 2018.
    Odgovor korisnicima

    i got broken heart syndrome which i had never heard of before.

  13. 29. velj 2016.
  14. 30. pro 2019.

    Looking for any support I can get and not having any luck, so trying to branch out to Twitter and still pretty lost. Forgive me if I'm doing this wrong, but please RT! TIA!<3

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  15. 1. lis 2014.

    Collaboration for a good reason. with . MyVintageShow

  16. 17. sij

    Sent an email to about hoping he might read it and help us out 🤞 FND and other rare conditions are not recognised enough and more needs to be done to educate medical professionals as well as the general public 🧠

  17. Odgovor korisnicima
  18. 21. tra 2012.

    To go back to the emergency room or not... THAT is the question ?

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