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Waiting to go down for major surgeries and my biggest fear? That they haven’t yet done my med history properly and someone will think they know it all and won’t listen enough to keep me safe.
#EDSlife#rareillnesses#AnxiousPrikaži ovu nit -
Totally with you on this one, my mutations indicated a high risk for at least 6 illnesses, some of which are
#rareillnesses , all of which I have. I was totally mind blown when I got my results. -
The only reason that I don't go to the hospital to get excused from class is because the hospital can't help me anyway.
#rareillnesses -
#rareillnesses. We deserve research/charities/notice Where are the shops selling for a collective rareillnesses charity? -
#NHS#USA#Trump#AlfiesArmy this is why the NHS should free Alfie Evans to a healthcare provider of the parents choice not end his life#obamacare#Rareillnesses American Healthcare and the NHS https://blogs.spectator.co.uk/2018/02/american-healthcare-and-the-nhs/ … -
In
#rareillnesses 20% of the cases are due to associated factors, such as nutrician, enviroment and infection. http://www.iss.it/cnmr/index.php?lang=1&id=2299&tipo=76 … -
Anyone who suffers from Cyclic Vomiting Syndrome, do you find it difficult to work? What are you doing for treatment?
#CVS#RareIllnesses -
1 million euros for
#research into people who have survived being in a#coma. Neurologist Prof. Steven Laureys has been awarded the Generet Prize for Research into Rare Diseases.#rareillnesses@UniversiteLiege@CHULiege https://www.kbs-frb.be/en/Newsroom/Press-releases/2020/20200116AJGeneret …pic.twitter.com/ZSdXVJ7lf5
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#Mayo joint venture looks for new uses for drug molecules. Focus will be on new therapies for#rareillnesses. http://strib.mn/2sVV02F -
@John5370 Thanks for follow www.livingwithvwd.org www.bensfriends.org www.livingwithataxia.org#rareillnesses -
This tweet is dedicated to those who suffer daily from
#rareillnesses. For all those who#endudre and#perservere with#invisibleillness, we want to raise#awareness this#RareDiseaseDay and#pray for a#cure to end disease.#ShowYourRare#ShowYourStripespic.twitter.com/toM6e94L2C
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i got broken heart syndrome which i had never heard of before.
#rareillnesses -
A version of this is also needed for
#cushingsdisease survivors and other#rareillnesses. https://twitter.com/AstraZenecaUS/status/1113555806408990720 … -
https://www.youtube.com/watch?list=PLw82lJoP71WhRRUPnNeap9eYHB7qROv1A&v=02zR9r-LOfQ … Beautiful video about rare illnesses
#charity#rareillnesses -
@NLizaki@twitchyspoonie@jenbrea Looking for any support I can get and not having any luck, so trying to branch out to Twitter and still pretty lost. Forgive me if I'm doing this wrong, but please RT! TIA!<3#rareillnesses#RareDisease#invisibleillness#chronicillness#spooniePrikaži ovu nit -
Collaboration for a good reason.
#Kids with#rareillnesses. MyVintageShow#donation#zumba#santapola… http://instagram.com/p/tnOzHTsl2h/ -
Sent an email to
@MattHancock about#fnd hoping he might read it and help us out
FND and other rare conditions are not recognised enough and more needs to be done to educate medical professionals as well as the general public
@FNDHopeUK@FNDAction@NHSuk#rareillnesses -
tragic mass misdiagnosis Inc primary
#sleep disorders#heart#rareillnesses as#cfs http://www.meresearch.org.uk/information/publications/misdiagnosis-on-a-grand-scale/# … -
To go back to the emergency room or not... THAT is the question
#RareIllnesses#IsThisAJoke?
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