Rezultati pretraživanja
  1. prije 58 minuta

    Having a rare disease shouldn’t change who you are

  2. 16. tra 2019.

    A person born with hemophilia has it for life. There's currently no cure for hemophilia, but gene therapy could be a possibility in the future. Share this for awareness. World Hemophilia Day is Apr 17

    4 proslijeđena tweeta 7 korisnika označava da im se sviđa
  3. 13. lis 2016.

    RT : School project: she chose to turn a rare disease into a superhero! .

    8 proslijeđenih tweetova 16 korisnika označava da im se sviđa
  4. 30. srp 2019.

    A person suffering from a Crohn’s disease flare-up asked to use a Starbucks bathroom. He was denied, but that’s illegal.

    2 proslijeđena tweeta 4 korisnika označavaju da im se sviđa
  5. 15. pro 2019.

    Rare Disease Q&A: What Rare Diseases Are and Why That Matters

    2 proslijeđena tweeta 6 korisnika označava da im se sviđa
  6. 16. sij

    Everybody knows you can’t stop a real SuperHero! 🦸‍♀️

    Odgovor korisniku/ci @LittleMissSis
    now!!! The world is ours!!! What a difference this makes! 💜💜💜
    1 reply 3 korisnika označavaju da im se sviđa
  7. 23. ruj 2019.

    September is Awareness Month. Symptoms of include shortness of breath during activity, a persistent dry cough, fatigue and clubbing (widening/rounding) in fingers or toes.

    2 proslijeđena tweeta 12 korisnika označava da im se sviđa
  8. 27. sij

    Which chore do you find the hardest because of your ?

    1 reply 2 korisnika označavaju da im se sviđa
  9. 27. sij

    Do you share details about your condition online? If so, why? We'd love to hear!

    2 korisnika označavaju da im se sviđa
  10. 26. velj 2012.
    Odgovor korisniku/ci

    reina - no penalty saves & 2 goals thru his legs. Eclipsed by Heaton's wonder save from Gerrard. Nice for keepers tho

  11. 20. sij

    Are you confident in asking others for emotional support if you need it?

    1 reply 2 korisnika označavaju da im se sviđa
  12. 21. kol 2019.

    NHS approves Hemlibra (Emicizumab) for patients with Type A

    2 korisnika označavaju da im se sviđa
  13. 18. srp 2018.
    Odgovor korisnicima

    Global Genes are ground breaking!!

  14. 22. pro 2019.

    We may have the same diagnosis, but we are vastly different:

    4 proslijeđena tweeta 9 korisnika označava da im se sviđa
  15. 21. sij

    You are likely to hear and read many new medical terms when you are diagnosed with 's or colitis. This A-Z of medical terms from explains some of the terms most often used.

    3 korisnika označavaju da im se sviđa
  16. prije 4 sata

    Make a difference in your health: Be your own advocate! You might be surprised about the difference advocacy could make in your own health.

  17. 27. lis 2019.

    Why is it hard to talk about our pain?

    1 proslijeđeni tweet 2 korisnika označavaju da im se sviđa
  18. 3. velj

    What seemingly 'small' thing takes up your energy?”

  19. 27. svi 2018.

    Thanks for an amazing gala last night - it was an honour to be there as Jill Ley, the Priest Family & the Linton Family were presented with “Rare Heroes” awards & to listen to Christina Gentle’s moving tribute to her sister Jessica.

    3 korisnika označavaju da im se sviđa
  20. 4. velj

    Gene therapy may be long-term cure for

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