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    The Initiative has selected 30 patient groups to receive $450,000 each over two years to help advance research for . We are proud to announce that more than 50% of the selected organizations are NORD members. Read more:

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    Are you looking for funding to help you attend an upcoming conference? We have a number of travel bursaries which you might want to find out more about.

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    Rare diseases, when taken together, are not that rare at all. Read more...

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    How much of that will be going to tertiary services to increase expertise?

  5. Some can be so rare, they affect just a handful of people globally, whiles some can be quite common in certain populations or even families. We are still counting down to .

  6. - Signs & symptoms of 70% of rare diseases appear exclusively in childhood. At least 4% of children are diagnosed with a by age 17. are chronic, progressive, degenerative and often life-threatening.

  7. 📢📢Tomorrow!! Webinar on management of relapsed/refractory in adult by Prof. Boissel. Register now!

  8. Catch out right platform to be on the World’s finest Mail Us : bacterialdiseases@memeetings.com Whats app on:+447723584440

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    Inborn errors of metabolism: Memorize this diagram, .

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    Our mission to bring precious moments to patients with keeps growing. We’re excited to introduce our new Russia-based team who will be responsible for bringing PTC values to Russia. Zdravstvujtye!

  11. Thank you for the shoutout ! We agree wholeheartedly with this sentiment! We as a community must elevate & support young motivated researchers to focus on to reach our long term goal of new therapies and one day, cures!

  12. A fashionable way to remember the female carriers of & support the cause:

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    2nd for & :"from the bench to the bedside" started yestderday! Hosting AOU Federico II-Naples and led by Prof. Antonio Risitano. Welcome to the participants!!

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    7,000 , one community fighting for cures. We’re excited to be part of the Initiative Network to accelerate science and find treatment options for rare diseases (like Syndrome!)

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    Congratulations to all the teams that have received this generous grant!

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    I'm sure it's going to be a great event, raising awareness however big or small really does make a huge difference in the world of 👏👏

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    Did you know affect between 3.5% to 5.9% of the worldwide population? Join us for the opening of a powerful art exhibition with , hosted by , & ! Let's raise awareness👇

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    Every stripe has a story. I have tethered cord syndrome, one of 7K+ .

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    What an amazing nonprofit organization bringing awareness to . Thank you ! (also go 😉😉)

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