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The
@ChanZuckerberg Initiative has selected 30 patient groups to receive $450,000 each over two years to help advance research for#rarediseases. We are proud to announce that more than 50% of the selected organizations are NORD members. Read more: https://bit.ly/36VZlpE -
Are you looking for funding to help you attend an upcoming conference? We have a number of travel bursaries which you might want to find out more about. https://ern-euro-nmd.eu/bursaries-late-2020/ …
#EJPRD#rarediseases pic.twitter.com/pIfhGf4zK0
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Rare diseases, when taken together, are not that rare at all. Read more...
#rarediseases#pharma#lifesciences https://onphr.ma/38cdtfS pic.twitter.com/z3DXXQATE3
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How much of that will be going to tertiary services to increase expertise?
#rarediseases -
Some
#rarediseases can be so rare, they affect just a handful of people globally, whiles some can be quite common in certain populations or even families. We are still counting down to@rarediseaseday .#23daymore@Share4Rare#rareiscoming#RareAsOnepic.twitter.com/S0uEaitYey
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#Pledge4RD - Signs & symptoms of 70% of rare diseases appear exclusively in childhood. At least 4% of children are diagnosed with a#raredisease by age 17.#rarediseases are chronic, progressive, degenerative and often life-threatening. pic.twitter.com/c5BBxqohFj
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Tomorrow!! #EuroBloodNet Webinar on management of relapsed/refractory#AcuteLymphoblasticLeukaemia in adult by Prof. Boissel. Register now! https://eurobloodnet.eu/education/webinars/ …#RareDiseases#Hematology#ALLpic.twitter.com/zmq9NAaU2X
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Catch out right platform to be on the World’s finest Mail Us : bacterialdiseases@memeetings.com
#BacterialDiseases2020#CPDcredited#Bacteriology#Virology#InfrctiousDiseases#RareDiseases#Istanbul#globalevents#Turkey Whats app on:+447723584440pic.twitter.com/YnvvuPtrZL -
So excited to be at the Broad this
#RareDiseaseDay.#rarediseases https://twitter.com/AnnaGreka/status/1224686089522335745 … -
Inborn errors of metabolism: Memorize this diagram,
#SMFM20.@MySMFM#TeamZebra#rarediseases pic.twitter.com/ep3dAPqnFW
Prikaži ovu nit -
Our mission to bring precious moments to patients with
#rarediseases keeps growing. We’re excited to introduce our new Russia-based team who will be responsible for bringing PTC values to Russia. Zdravstvujtye!#OnePTCpic.twitter.com/VIqkJIsXJA
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Thank you for the shoutout
@RarePOV! We agree wholeheartedly with this sentiment! We as a community must elevate & support young motivated researchers to focus on#RareDiseases to reach our long term goal of new therapies and one day, cures!#DataDIYhttps://twitter.com/rarepov/status/1224718496778674177 …
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A fashionable way to remember the female carriers of
#rarediseases & support the cause: https://twitter.com/remember_girls/status/1224037327699435521 …
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2nd
#EuroBloodNet#Preceptorship for#AplasticAnemia &#ParoxysmalNocturnalHemoglobinuria :"from the bench to the bedside" started yestderday! Hosting AOU Federico II-Naples and led by Prof. Antonio Risitano. Welcome to the participants!!#PNH#AA#ERNeu#RareDiseases@IolasconLpic.twitter.com/LV2WtLMLEa
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7,000
#RareDiseases, one community fighting for cures. We’re excited to be part of the@ChanZuckerberg Initiative#RareAsOne Network to accelerate science and find treatment options for rare diseases (like#LiFraumeni Syndrome!) http://www.RareAsOne.org pic.twitter.com/RthIXHJisB
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Congratulations to all the
#RareDiseases teams that have received this generous grant! https://twitter.com/RareDiseases/status/1224379039571496961 … -
I'm sure it's going to be a great event, raising awareness however big or small really does make a huge difference in the world of
#RareDiseases
https://twitter.com/OPENHealth/status/1224299717443670016 …
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Did you know
#RareDiseases affect between 3.5% to 5.9% of the worldwide population? Join us for the opening of a powerful art exhibition with@SKyriakidesEU, hosted by@Kympouropoulos,@TomislavSokol &@loucas_fourlas! Let's raise awareness
https://forms.gle/ZzDPgCLTWuHW9BMu6 …
#EU40Talkspic.twitter.com/hPhbntEq6m
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Every stripe has a story. I have tethered cord syndrome, one of 7K+
#rarediseases.#showyourstripes#RareDiseaseDaypic.twitter.com/qwP5wFoCAK
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What an amazing nonprofit organization bringing awareness to
#RareDiseases. Thank you@UpliftingAth!#wetacklerare (also go#49ers
)https://twitter.com/UpliftingAth/status/1222994026678378496 …
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