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CDH International is very grateful to UK actor, Charles Lawson, for this great 25th Anniversary shout out and
#snowangelchallenge challenge for the kids! (**language warning) https://youtu.be/xiQAz4aMHkM#cdh#congenitaldiaphragmatichernia#raredisease#patientadvocacy#charity -
The
#PatientGroup panel from#RAREsummit19 is now live!@PaulLikeMe, Carina Thurgood@MaddiFoundation,Tanya Collins-Histed of@IGAgaucher, Allison Watson of@Ring20UK & Dr Ana Mingorance@CNSdrughunter discuss the challenges & successes in#raredisease R&D https://bit.ly/2RW9YEH pic.twitter.com/H1QvdQoYDM
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Stephen for a mini serenade by the
@HealthyHumorInc clowns@ChildrensNatl last week. Music clicks with him!#clowns#music#happy#healing#surprise#RareDisease pic.twitter.com/ATAHn3IEBKPrikaži ovu nit -
Today is
#WorldCancerDay
For more information on #cancer and#myositis watch this video by@docrota Chair @TheMyositisAss's Medical Advisory Board. https://youtube.com/watch?v=D0OUg8rfS1Q&feature=youtu.be …#raredisease#rheumatology#dermatology#neurologypic.twitter.com/vvYJlqviB7
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CEO Nevan Elam sat down with
@KarenJagoda for an episode of the Empowered Patient Podcast to discuss how lessons from the tech industry inform the pursuit of therapeutics in#RareDisease like congenital hyperinsulinism. Listen here: https://bddy.me/2SjRWv8 -
#ORPH Cathal Friel speaks to@proactive_UK@AndrewScottTV following £5.3m fundraise, along with Professor John Oxford, adviser to@OpenOrphan & founder of@hVIVO_UK who's quarantine clinic could play a role in treating#coronavirus patients#RareDisease https://youtu.be/k5IakI4fRZo -
Genetic risk of
#myositis - Myositis 101 for patients 4th video by Dr. Rohit Aggarwal, Co-Director of Myositis Center of University of Pittsburgh. Watch and learn more. https://youtu.be/0F35sisdL8w Thanks@docrota!#myositisawareness#autoimmunedisease#raredisease#Myositis101pic.twitter.com/sSBwHaJhlG
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#podcast Nevan Elam@RezoluteBio. talks about their work developing therapeutics for congenital#hyperinsulinism, a rare pediatric disease and for#diabeticmacularedema, a vision-related complication of#diabetes.#RareDisease#PediatricDisease#DMEhttp://empoweredpatientradio.com/developing-therapeutics-for-rare-pediatric-diseases-with-nevan-elam-rezolute?tdest_id=298239 … -
MM&M's February 2020 issue is the third annual data issue including features on:
#Clinicaltrials being revolutionized by real-world patient data
MAHF's inductees and future famers
Analysis of 4 #raredisease campaigns https://www.youtube.com/watch?v=zdpJJMNaqUU … -
Super proud to be part of the
#IAmNumber17 campaign to raise awareness of#RareDiseases. Meet the 17#Changemakers.... https://iamnumber17.geneticalliance.org.uk/ This campaign was initiated & funded by@TakedaPharma#RareDisease pic.twitter.com/mYR5cNdZiS -
We are excited to launch a new effort for 2020: “NDF Talks” - our new podcast series that will bring the stories and experiences of members of our GNEM community.
#GNEM#Curehibm#Hibm#NDF#Podcast#GNEMpodcast#RareDisease https://youtu.be/ifKCfO02OMQ -
10 things you should know about
#raredisease from#NORD@RareDiseases https://buff.ly/2vF2VYv pic.twitter.com/NwzS0W3ml4
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Episode 6 & 7 is up on our YouTube Channel - The Ladd Family! https://youtu.be/YG1knVvDBvs
#cure2025#raredisease#mps1#hurler#hurlersyndrome#raredisease#thekennedyladdfoundation#prayingforkennedyandlincoln https://www.instagram.com/p/B77JL2kpfYY/?igshid=oyu9re1vmoxw … -
Bruh, this dude out here puttin pens in his hair...
#schoolcool#backtoshool#RareDisease#relatable#meme#reaction#omgpic.twitter.com/GGwUTuiEeJ
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