My name is Cavan Hoey I have two Rare Diseases called XLP,and HLH I live in Bodmim Cornwall I am raiseing awearness of Ultra Rare Diseases
#RareDiseases in India, especially #JammuKashmir. bridging families with #raredisorders to health resources. Human Genetics Research Group, #HGRGsmvdu
National Organization for Rare Disorders (#NORD) is the voice of the #raredisease community. Official U.S. sponsor of #RareDiseaseDay
Am Sonntag, den 28. Februar 2010 findet in Basel und Zürich der TAG DER SELTENEN KRANKHEITEN statt.
28 Subat 2019 Dunya #NadirHastalik Gunu
Nadir Hastalik Toplulugu
#TurkeyRareDisease
Amacimiz #NadirHastalik farkindaligi olusturmak.
#RareDisease
70 million Indians suffer from #RareDiseases. #Genomics offers them a new #hope.
Connecting #raredisease patients globally at http://www.rareconnect.org . 
Website help at @RareConnectSup.
The latest CRISPR breakthroughs. Also at http://facebook.com/CRISPRNews #biotechnology #cas9 #genetics #raredisease #genomics #germline
Disability rights advocate currently working in blindness rehabilitation. The voice behind #WorkingBlind podcast. #Inclusion #A11Y #RareDisease #HumanRights
National campaign run by @GeneticAll_UK to improve the lives of those affected by rare diseases and all who support them #RareDisease. Monitored weekdays 9-5.
Leading patient advocacy organization working to eliminate the challenges of rare disease faced by 400 million people worldwide. #CareAboutRARE #RareDisease
ISMRD is the leading advocate for families worldwide affected by a Glycoprotein & Related Storage Disease. #RareDisease https://www.facebook.com/ismrdcharity
Singer,Model,Tweeting PainGoddess,Leading international Human Rights groups are calling for arrests at the NorthEast Hants CCG for severe cruelty to IrishDoctor
#Rarediseases #infectiousdiseases
We are organizing a conference on ‘World Congress on Rare Diseases,on
Dec 5-7, 2018, at Dubai,UAE.
rarediseases2018@gmail.com
I am a #chronicpainwarrior fighting #EDS #Dysautonomia #Gastroparesis & #Chiari #HealthcareIsAHumanRight and I #believe in #BernieSanders !