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About Alex TLC - how we help fand support families affected by this
#raredisease#leukodystrophyhttps://www.pscp.tv/w/b9KGojFvUEtMQm1kTlJ4RWR8MWxQS3FvWkJObFBKYoYFA4wmb3zgpigTovLgMEW6MsIZLnD1VIf6W0zV_4Yo … -
Watch Monica's broadcast: ITS TIME TO ANSWER YOUR QUESTIONS 3/15#ChonicPain
#Degenerative#Joints#RareDisease#Dis…https://www.pscp.tv/w/b1x_WTc0MzI3Njd8MVlxeG9yQWJqcHlKdqkH45ABns3mA_wL845xoaVVLhPBXSNNiCLRHG6FIT5g … -
A3:
#epatient tells their own experiences with#genomics @byrceolsen#raredisease#cancercare#ehealthchat#ICSNorCal@IntelHealth -->https://www.pscp.tv/innonurse/1ZkJzdZNlWLKv … -
#2017GGtribute to celebrate Champions in the#raredisease Community. https://www.pscp.tv/w/bIxqiTF6WUtiZ1BXQmVyamV8MU1ueG5tUUFWcmRKT56J-yq48B2dkAwa5HrOgUt29IUff1fzz2e3WvLKC1DN … -
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@yann_eurordis@eurordis presents strategy to@UN resolution on#RareDisease at@rarediseasesint meeting. Live:http://bit.ly/2qUcpXN -
#EnfermedadesRaras Conf en directo 10 Feb The Right to Health: The#RareDisease Perspective Conference – follow via https://www.pscp.tv/w/1BRJjEbrEjQGw pic.twitter.com/MUMZXPYlJ4
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Watch on
#Periscope
: Happy #leapyear and#raredisease awareness day
lets chat #mito#mommyscopes#mitochondr… https://www.pscp.tv/w/aaUMNjY3NzYyNTl8MVlwS2tQQndlTXlHajxPQBX3Qu2D9Bk4kltxt7MHRv87QJa6tsv3UXcrYUNG … -
EN DIRECT sur
#Periscope : Consultation conjointe enfant-adulte des maladies rénales génétiques HUG #RareDisease… https://www.pscp.tv/w/aaQVojIzNDk3Njd8MVlxSkRta3FYand4VvtJSvJeFpbGVv62nY4okR1yOncodDb-N6STERz50wdI … -
Watch on
#Periscope: Blindfolded Brainfreeze Challenge to support #IH#BBF#RareDisease#findcures https://www.pscp.tv/w/aZ5QhzcwMzMyMDh8MWxER0xib3J3cm14bYWVBhBLPuNJZ1ghOVyaL_eSrchH_Z1yVaTGewk8EYPg … -
What is one of the world's most expensive drugs like in real life? Watch on Periscope https://www.pscp.tv/w/aNnAlzE1MTA2OTZ8MXpxS1Z5WnZuVmF4QuWRCIbLQeYzgC_sJC6gdt1eVBFdD4Adj22OD-QacJjL …
#raredisease#drugpricing -
LIVE on
#Periscope: Infusion of the world's 2nd most expensive drug - #Elaprase - for the#RareDisease#HunterSyndr… https://www.pscp.tv/w/aNm1jzE1MTA2OTZ8MXpxS1Z5WnZuVmF4QsX5RvUAXLGNEHANA-zqbzBRw2oVv5lzpnwGFfwXF_l1 … -
watching LIVE on
#Periscope: Finished Painting 
Baby Theodora 
#raredisease#TimothySyndrome Big
to @Theodor… https://www.pscp.tv/w/aJqu6jUwNDc1MTF8NTkzMTU3MTO7m8Z7jliAipT6FWKi67fga9Lj2rNScyPhrC6OTMaGWA== … -
watching LIVE on
#Periscope: the House effect 
10 reasons to Ditch 
your Dr #raredisease#healthcare https://www.pscp.tv/w/aIv9DzY4MTYyOTJ8NTExODMwMTboVDKCpaJmQZrNM-0KewruGXYsJ3F5FQdV8Ya_hv94wA== …
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