Rezultati pretraživanja
  1. 4. velj

    Regarding psychological involvement with , one common element that I've observed in every ME patient I've interacted with: Grief. This is from the loss of their job, income, social life, hobbies, sports, medical insurance, family, friends, and some case the ability to walk,

    Prikaži ovu nit
  2. prije 9 sati
  3. 3. velj

    is trending... All in your head You don't look sick Come on, try harder I get tired too Have you tried yoga? Sleeping all day? Lovely!

  4. 1. velj
  5. prije 8 sati

    When a simple family commitment renders you totally useless for 48hrs afterwards.....

  6. prije 2 sata

    It’s likely I won’t get to live to my grandparent’s age. That I have a poorer quality of life & my life expectancy won’t be the same as someone born in the 1940s. It’s interesting to see our will to live at play.

  7. prije 7 sati
  8. prije 8 sati

    This is my 11 year old daughter texting me while she while on vacation with my wife. A vacation I couldn’t go on because I was too sick. This is

  9. This graphic speaks volumes. 95% of the time I'm definitely in lounging mode, you'd be surprised how much energy getting dressed actually uses up. So when you see me in 'leaving the house' mode it's a fake, a front, it helps me feel "normal" for a while

  10. prije 8 sati

    is the monster, but those in the medical system who blame for this disease & tell us we’re lazy & seeking attention, are aiding & abetting the monster. You don’t need all the answers, you just need to listen & not blame victims.

  11. prije 8 sati

    I don't have many followers (which is fine!) but if any of you who aren't could retweet some of the tweets it'd be appreciated. It'll help get the message out beyond the twitter community. Thanks.

  12. Imagine, just for a moment, that you've had surgery. You can't move around much or leave the house for 3 weeks. What bothers you? Solitude, not working, not cooking or cleaning, being in pain? Now imagine instead of 3 weeks this is the rest of your life

  13. prije 9 sati

    What I’ve lived as a would shock you . Not being believed for 20yrs hurt more than my neuropathic pain that’s like a migraine in my whole body. Only now that I’ve been 100% bed bound (20 months) am I taken seriously. My doctors have no solutions.

  14. prije 9 sati

    So true: ME patients don't fake disease - in social interactions, we usually fake being well...

  15. prije 9 sati

    Around 20,000 people in New Zealand have this illness. It has a huge impact on our lives. Many people know nothing about it. To learn more check out # and read people's stories

  16. prije 9 sati

    To those who say are faking. You’re right, we are. Every day that we fight, we’re faking that we’re not breaking. Every time we smile & laugh we’re faking that we’re not in agony. Every time we distract ourselves we’re faking that we aren’t terrified.

  17. In summary, what is “normal” for ME can be hard to distinguish from dying, especially when you are forced to normalize really alarming and intense symptoms daily, for years on end. This puts in perspective the quality of life people with ME can experience.

    Prikaži ovu nit
  18. prije 9 sati

    don’t forget about the wonderful new toolkit for ME Awareness Hour... New artwork has been added for you to use. Thank you for this 😘 XXX

  19. Brain foggy sentence of the day: “Right, I’m just going to go and turn my curtains off.”

  20. 1/ Thread Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Is it really that bad? Trigger warnings: The studies below paint a very bleak picture

    Prikaži ovu nit

Čini se da učitavanje traje već neko vrijeme.

Twitter je možda preopterećen ili ima kratkotrajnih poteškoća u radu. Pokušajte ponovno ili potražite dodatne informacije u odjeljku Status Twittera.