Rezultati pretraživanja
  1. 28. sij

    Fantastic closing session with CEO highlighting the reason we all go to work everyday.

  2. 6. stu 2019.

    Few, if any, can advocate for their children more passionately than parents. Another powerful panel at patient summit.

  3. 6. stu 2019.

    Sobi is excited to be in Cambridge, MA as a sponsor of ’s 2019 Patient Advocacy Summit. Looking forward discussing how life science companies can fully incorporate the patient experience into the work we do!

  4. 7. stu 2019.

    Thank you for having us on yesterday’s panel at the Patient Advocacy Summit. It was a worthwhile exchange, connecting biology to the patient experience.

  5. 6. stu 2019.

    Head of Clinical Operations @PROMETRIKA is attending 's Patient Advocacy Summit. Robert Coughlin’s heartfelt opening remarks included the exciting news of how 's latest cystic fibrosis drug approval (TRIKAFTA™) is going to save his son’s life.

  6. 6. stu 2019.
  7. 21. ožu 2019.

    We will be at the Annual Meeting next week! Looking forward to connecting with like-minded, industry leaders. Learn more:

  8. 6. stu 2019.

    In his opening remarks ⁦⁩ Patient Advocacy Summit, President and CEO Robert Coughlin shared his gratitude that his son will be receiving the new CF treatment from ⁦⁩. “We didn’t know if we were going to run out of time”

  9. 6. stu 2019.

    “We’re developing Starwars medicine and delivering it into a Flintstones health system” Dr Freda Lewis-Hall at MassBIO Patient Summit.

  10. There’s nothing like getting out of the office to see in action. Our CEO Nancy Lurker recently visited a NY ambulatory surgical center whose incredible staff performs almost 15,000 eye procedures a year! Thank u Island Eye Surgicenter for hosting us!

  11. 6. stu 2019.

    I have worked for for 4 years - I’ve heard him tell his story hundreds of times. Today was a good day. We’ve prayed for this day.

  12. 6. stu 2019.

    “We’re a rare disease family. We have to have each other,” says Dr. Kim Stephens of on the importance of fostering community.

  13. 27. ožu 2019.

    We are off and headed to the UK! 🇬🇧 We’re thrilled to travel to to further enhance our understanding of and the needs of the . We are ready to learn and collaborate!

  14. 6. stu 2019.

    Joining today to celebrate the industry’s commitment to patients first and foremost. Everyday, we are .

  15. 6. stu 2019.

    We were delighted to spend the day at the Patient Advocacy Summit connecting with the advocacy community and discussing how to integrate the patient and the patient's voice throughout the drug development cycle.

  16. 6. stu 2019.

    Tracy Antonelli, beta-thalassemia pt & parent (and former clinical trial manager!) “The endpoint is not grams of hemoglobin, but can I chase my kids at the playground, can my kids not miss a field trip for a transfusion or wear a pump at night.”

  17. 28. velj 2019.

    Great to meet with President and CEO, MassBio, Mr. Coughlin. Attending Rare Disease Day at Boston.

  18. 6. stu 2019.

    There’s no one better to kick off Patient Advocacy Summit than as he tells his Dadvocate journey over more than 18 years that just this week took an amazing turn for the better. ®️

  19. 6. lis 2019.

    The entire team enjoys working closely with our partners at ! Carol Malysz is !

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