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I'm raising money for Mitsou Lynn's Battle with Ullrich.
#orphandisease#ullrich#musculardystrophy Click to Donate https://www.gofundme.com/f/pu6qr3-mitsou-lynn039s-battle-with-ullrich?utm_source=twitter&utm_medium=social&utm_campaign=p_cf+share-flow-1 …Prikaži ovu nit -
I suppose there is a small chance of that, but if the trial is rejected due to lack of placebo data, shame on regulators, especially since Optune was approved based on a single arm. SOC survival in GBM is well documented and the results aren’t pretty. It’s an
#orphandisease -
#FASD#NDPAE may seem to be a#RareDisease yet affects 1 in 20#American &#Canadian citizens. Let’s move beyond#OrphanDisease status to#Epidemic & encourage#ClinicalTrials for#AutonomicArousal &#Psychogenic#Non-epileptic#Seizures#PNES in these#patients.https://twitter.com/NIHClinicalCntr/status/1101119836904673282 …
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Best Seller!!!!! March 12 can’t come soon enough! Order your copy now!!
#MedEd#bioethics#cysticfibrosis#patientperspective#chronicallyill#geneticdisease#orphandisease#65roses@penguinrandom#swhpn#legacy#HealthcareForAll#curecf#saltinmysoul#superbug#phagetherapypic.twitter.com/Jo8Rps1pcp
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For
#RareDiseaseDay I want to honor Neil Caesar who died last year from a Mycobaterium abscessus#hospitalacquiredinfection. We must improve our research on#antibioticresistance so that cases like my dad's don't continue to rise.#restinpeace#researchpriorities#orphandisease pic.twitter.com/yKzrmSLFQJ
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How do you live to inspire? How do you get inspired? Please share in the comments
#dystoniaawareness#raredisease#dystoniaeurope#Inspirationalquote#inspoquote#neurologicaldisorder#orphandisease#braindisorder#movementdisorder#abnormalposture#cervicaldystonia#dystoniapic.twitter.com/PTtDmhuOmA
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May is
#pten hamartoma tumor syndrome awareness month. Educate yourself on the signs: macrocephaly, personal or family history of cancer, and/or#autism. Follow the#nccn screening guidelines.#orphandisease#phts#genetics#cancerpic.twitter.com/YZOuSuO5mi
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ideaXme with Patricia Weltin, Founder, Beyond the Diagnosis , nonprofit organization uniting art and science to inspire research and innovative treatments for people living with rare and neglected diseases - https://www.youtube.com/watch?v=pZoIOsJ0ZKY …
#RareDisease#OrphanDisease#Art#Science -
Ultra‐orphan lysosomal storage diseases: A cross‐sectional quantitative analysis of the natural history of alpha‐mannosidosis https://doi.org/10.1002/jimd.12138 …
@markus_ries#orphandisease pic.twitter.com/M55E3Cepes
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Great blog on rare and orphan disease pharmaceuticals from my colleagues
@HealthAdvances today on#rarediseaseday2019#orphandisease https://twitter.com/HealthAdvances/status/1101239116711297026 … -
Everyone who's heard this phrase (or something like it) raise a hand
#removethestiga#dystoniaawareness#dystoniamovesme#raredisease#dystoniaeurope#Inspirationalquote#inspoquote#neurologicaldisorder#orphandisease#braindisorder#movementdisorder#abnormalposturepic.twitter.com/nqoeW9CLQG
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My name is Julie Solis and I'm a
#ValleyFeverAdvocate in#California. Our community group#ValleyFeverAwarenessAndResources strives to bring awareness and resources to this#OrphanDisease. Please call me if you have questions, (661)404-0196.#LetsTalkDirt#ValleyFeverEpidemicpic.twitter.com/9AdV9rXymA
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Kicking off Wed morning at
#BiotechShowcase with the#RareDisease#OrphanDisease panel with David Snow Chief Business Officer at$ELOX#CysticFibrosis#CFpic.twitter.com/x9pUNms4DA
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When it comes to uncommon (
#raredisease) conditions, it’s an Olympian challenge for doctors to connect the#diagnostic dots. In#medicine, the response “I don’t know” is now an act of#courage.#orphandisease#Interoperability#EHRs#genderbiashttps://www.linkedin.com/posts/gilbashe_look-for-the-zebras-medical-mysteries-transformational-activity-6571861239608201216-lrG1 … -
It's unfortunate but it's true, isn't it? You're thinking you want to do one thing but the body does another...
#dystoniaawareness#dystoniamovesme#raredisease#dystoniaeurope#Inspirationalquote#inspoquote#neurologicaldisorder#orphandisease#braindisorder#movementdisorderpic.twitter.com/VhNEUpJazH
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And 25/61 drug approvals in 2018 were for
#orphandisease!Prikaži ovu nit -
This is how pharmaceutical industry financial modelers think about your rare disease. http://bit.ly/2Ln3I7Z
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Let's try to be patient with ourselves. As this quote states, we are all unique and we all have our, one of a kind, timeline...
#dystoniaawareness#dystonia#raredisease#dystoniaeurope#Inspirationalquote#inspoquote#neurologicaldisorder#orphandisease#braindisorder pic.twitter.com/NwCbPBd4pN
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Our CEO, Krishnan Nandabalan, was pleased to address the World Orphan Drug Congress about the uses of artificial intelligence and machine learning to drive
#innovation for rare disease treatments.@orphan_drugs#RareDisease#UltraRare#OrphanDisease#AI https://www.terrapinn.com/conference/world-orphan-drug-congress/index.stm … -
#WODCUSA day 2 Some very interesting therapeutics coming through in#orphandisease from small biotech. Financial models still difficult. Watching Jeff Ajmer, Biomarin, talking about funding Gene Therapy and enable broad access#WODCUSA#RareDiseasepic.twitter.com/AMbbcpPLtc
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