Rezultati pretraživanja
  1. New clinical trial 🚨 This trial uses mesenchymal stem cells along with standard of care therapy to treat dogs diagnosed with . We hope to decrease severity of disease, improve symptoms and shorten time to remission.

  2. prije 8 sati

    My little brother just got home after 6 days in hospital after experiencing crisis. I've learnt so much this week. So wanting to spread awareness

  3. prije 9 sati

    Help raise awareness about & learn how to help this child’s journey. Thank you.

  4. prije 13 sati

    Random vent -- I feel like somebody snatched my brain and soul and put it into a completely different body that does not move, feel, or operate the way the one I had for the first 60 years of my life. :(

  5. prije 21 sat

    Myasthenia gravis affected individuals are more likely to get infections - a study founds Whats' your opinion on this? Join the session@ Euro Infectious Diseases congress in Paris

  6. 4. velj

    25% of people who completed our symptoms survey said a myasthenic crisis was their worst symptom, 18% said problems with physical tasks. Read the full report

  7. 4. velj

    Nicola shares her experience of taking part in a clinical trial, and why she’d urge all rare disease patients to join one. Learn more.

  8. 4. velj

    Got the delight of another one of these tests this morning to confirm the relapse in 😭 Out for a tonight though so you know, swings and roundabouts 🐷

  9. 3. velj

    Has anything positive come out of your MG diagnosis?

  10. 2. velj
  11. 2. velj

    I used the motorized scooter in the grocery store. Thank goodness! No way I could have walked that far. Most exhausting part was bringing the groceries into the house. I’m done for the day. I think.

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  12. 1. velj

    One of the most difficult things about MG as a disability is that it is dynamic and always changing. It is not a static or predictable disease. Each hour and day is different. /7

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  13. Yesterday’s simple workout means today is a horrible pain & flare day where I can’t eat, sit-up, walk or function without help. Okay and all my other friends y’all win this round... but I’m not giving up!

  14. 31. sij

    Also tagging for inclusion of

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  15. 31. sij
    Odgovor korisniku/ci

    Us too. makes up a bulk of our therapeutic plasma exchange procedures. We also have a lot of patients that received “maintenance” therapy (weekly, monthly) etc.

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    GOOD MORNING!!😊 GO LOOK IN THE MIRROR AND TELL YOURSELF "THANK YOU FOR BEING YOU THANK YOU FOR FIGHTING SO HARD I APPRECIATE YOU I LOVE YOU DOES NOT DEFINE ME I DEFINE ME!" HAVE A GREAT DAY!!

  19. 30. sij

    We asked our community about their diagnosis experiences. This is what we learnt. Find out more today.

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