Rezultati pretraživanja
  1. 18. kol 2019.

    MG has no known cause or cure, but there is hope through continued research and treatment!

  2. 15. velj 2019.

    Haven’t been feeling well but it’s all good 💚

  3. 7. pro 2018.

    I could no longer sleep in bed, even on BiPAP – laying flat collapses my weak throat and paralyzes my diaphragm – so I moved to my sectional couch (which my dogs love).

    Prikaži ovu nit
  4. 1. lip 2019.

    June is Myasthenia Gravis month. Below is an infographic on how crippling this disease can be. To see mom live with it is both heart breaking & inspiring. Please read and retweet/like to show support.

  5. 13. srp 2019.
    Odgovor korisniku/ci

    As someone with a muscular dystrophy, handwriting notes & often being able to see well enough to make out what is on the slide. I rely heavily on documentation of stuff via pics & audio recordings. They may just be live tweeting for less abled bodies as well.

  6. 18. tra 2019.

    Carolinas MG Walk is coming up soon! Would you support our cause?

  7. Today, I was proud to declare June as Myasthenia Gravis (MG) awareness month. MG is a chronic autoimmune neuromuscular disease that causes weakness in the voluntary muscles.

  8. 5. lip 2019.

    June is Myasthenia Gravis (MG) Awareness Month, there is no cure only hope. If you'd like to know more visit

  9. 28. ožu 2019.

    We will be exhibiting at 2019 National Conference, March 30 - April 2 in Atlanta, GA at the JW Marriott Atlanta Buckhead. Swing by our booth to meet the Soleo Health team.

  10. 24. velj 2019.

    Scenes from today's MG Walk at Tradewinds Park in Coconut Creek. Thos is my third walk in the 3-1/4 years I've been living in South Florida, and I can't imagine ever not participating in it. That is, unless a miraculous medical discovery ever renders it unnecessary.

  11. 1. svi 2019.

    Follow along ! I will be tweeting all of May on account. Appropriately, the focus is moms and women living with MG. I serve on the digital communications committee & will be on Tampa Bay committee in 2020. Anything & everything for my mama.

  12. June is Myasthenia Gravis Awareness Month. I’m standing with the doctors, patients, researchers, and family members who are dedicated to finding a cure for this terrible disease.

  13. 4. stu 2019.

    This past weekend, the team attended the New England Regional Conference and the MG Physician & Patient Education Conference in Houston. We had a great time connecting and sharing ideas with the MG community.

  14. 2. lip 2019.

    June is Myasthenia Gravis Awareness Month. The disease never defines us, but does teach us to lean in to all that is good each day. Being allows us to be engaged with our neighbors, make our communities better places for all, & to live the truth: Love wins. Always.

  15. 26. lip 2019.
    Odgovor korisnicima

    Thanks fir bringing awareness to MG!

  16. Chicagoland seminar: MG & Clinical Trials, with RMalik MD from Rush, plus , Momenta, and argenx reps. Sunday Oct 27, Palos Heights. Register today:

  17. 1. sij
    Odgovor korisniku/ci

    Wow. Fast healing my friend!!

  18. 1. lis 2019.

    As you make a plan to live your best life with MG, you may need some tips and tools to help you along the way. We’ve pulled together some advice from leading experts in MG; ranging from doctors, to community leaders to people living with MG.

  19. 20. velj 2019.

    My Myasthenia Gravis does not stop me from dreaming! I’m a proud AMD Streamer on and a Army Retired Veteran

  20. 4. velj

    Join me for a 2020 St. Petersburg on Feb 22 supporting community and my mama? Support or sign up to walk with our Mama D Team .

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