Physios, OTs and any other health professionals. Please do NOT include "graded exercise therapy" in EHCPs for children & young people with #MECFS - it is no longer recommended in NICE guidance and may cause harm. Teach good energy management strategies instead 1/2
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Well, you’ve all had me thinking about my journey so far and because I’m an illustrator I find it easiest to express myself in paint. I’ve been walking around Long Covid island for almost 2yrs and this is my journey? Look a bit like yours? Life with #LongCovid and #MECFS
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Many have asked me what #LongCovid or #MECFS symptoms NATTOKINASE may help or potentially worsen. This 2-tweet 🧵attempts to answer your questions:
1) % Improved w Nattokinase by symptom
2) Comparison of top 3 symptoms btw quercetin, NK & curcumin
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Mine is not a #HappyHalloween . My life for several years is a daily living nightmare I cannot wake up from due to one of the most disabling & neglected diseases on earth #MECFS .
Somebody help us PLEASE. I don’t want to die
#Halloween2022 #Halloween #LongCovid #vaccineinjuries
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I don’t understand why every #MECFS & #LongCovid patient presenting with the classic neuro-immune & vascular symptoms, aren’t immediately sent for screening for:
- POTS
- EDS/hEDS
- EBV & HHV reactivation
- Microclots & hyperactivated platelets
- … what else did I miss?
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Once again so even single cell pond life can hear: THERE IS NOT ONE SINGLE EFFECTIVE TREATMENT FOR #LongCovid & #MEcfs!!! Those of us with ME/CFS have been at this for DECADES! Get it into your heads: conventional OR alternative, NONE OF IT FUCKING WORKS! We NEED URGENT research
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The results show physicians discuss #MECFS, depression, and Lyme disease with more negative language than the other diseases in the set.
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Happy to share that our new article with B.Scoles on Medical attitudes towards specific medical conditions has been published in JEBO sciencedirect.com/science/articl
#NHS #physicians
#EconTwitter #Health
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Trial by Error Fall 2022 crowdfund.berkeley.edu/project/33528?
Thousands of comments and readings on our just published study on #MECFS and #LongCovid , showing objective, significant signs of reactivation of latent viruses in saliva, compared with healthy.
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There are days I just can’t get my head round how reduced my life is now. How is it possible that I have to stay in bed everyday? Just how has that happened? #LongCovid #MECFS
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Gemütlich mit Freunden zusammensitzen, quatschen, spazierengehen, Glücksmomente sammeln. Unbezahlbar!
Für Menschen mit #MECFS unerreichbar!
Genießt das Leben so lange euch das Glück in Form von Gesundheit hold ist und schützt euch vor Infektionen und anderen ME/CFS-Auslösern!
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More lies from the Government while thousands more die due to poverty. The NHS is at breaking point millions have #LongCovid. The impact of Longcovid will have devastating effects on society for years 😢 #EnoughlsEnough #SavetheNHS #Forgotten500k #LongCovidKids #MECFS
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In other words, she lied. twitter.com/AdamBienkov/st…
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One of the millions of things I wish temporarily able-bodied people understood about living w/ #MECFS is that I do not fear death. I fear worsening symptoms and developing very severe ME. And any infection is a highly likely risk of me becoming bedbound again & tube-fed
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I’ve deteriorated this week. Am back to needing a couple of hours of sleep each afternoon.
Having to sit with that uncomfortable feeling of not knowing whether I’m just having a bad few days or whether maybe I’ve been overdoing it the last few weeks :/
#MECFS #LongCovid
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Herr ,
Frau ,
Ihre 3 wichtigsten Aufgaben für heute:
🔜Petition 122.600 umsetzen
🔜EU-Resolution vom 17.6.2020 umsetzen
🔜Koalitionsvertrag zu #MECFS u #LongCovid umsetzen.
#NotRecovered #MECFS #LongCovid #PostCovid
SIGNforMECFS.com
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This is one of the best images on hiw #LongCovid #PostVac #MECFS can feel like. I shared it once, I now do it again.
The UK health system and schools have always been fantastic in translating complex issues into easy to understand graphs and comics.
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Our defining Long COVID challenge has been asking people to share what ongoing symptoms after #COVID19 feel like in their own words.
We’ve had 100+ responses so far & @stillillcoronadiary has helped capture some of the descriptions shared. See the poster: bit.ly/3SDxiTK
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Hi . In einem deiner letzten Streams sagtest du „die, die nicht mehr selbst die Straße gehen können, brauchen erst recht unsere Solidarität“. Ich schaue dich lange & seit ich vor 2 J. an ME/CFS erkrankt bin, noch mehr. #MEcfs ist die schlimmste Form von #LongCOVID. 1/6
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All doctors should listen to this. #MECFS
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“The Forgotten”
Another Supportive video by @WesElyMD
Thank you for your advocacy
“These patient’s suffer immensely, and when these patients go to Dr’s…Dr’s tell them this isn’t real”
“Please remember to believe in these patients they are the experts of their own illness”
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I'm happy that I discovered if by accident and now it seems that hypoglycemia may play a role in at least a subset of #MECFS
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