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I need to let go of her day to day care & become a daughter again.
But I can't.
Not yet.
Mom doesn't even have tylenol during the fever & #IntractablePain. I'm losing her to a#BrokenSystem. I'm exhausted, & it's hard to hold back the tears.
And I can't fix it. #Help pic.twitter.com/p43awjYdv4
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It's illegal to give medical advice over twitter, but the lack of options drove her to seek help anyway. She was desperate to reclaim her life. Over the years,
#IntractablePain stole a lot from her. A 1980 car wreck left her in agony. pic.twitter.com/y0KmZeVSys
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Program Evaluator in TN, KY, FL Tweet about drugs, ending war on PWUD, health equity, & place. Also I’m a
#raredisease#intractablepain patient so I tweet about intersection drugs and chronic pain -
#IntractablePain#chronicpain stop punishing pain. this is a#humanitarian issue! lives on the line from#governmentlieshttps://www.pscp.tv/w/b1yOqTF4TlFhYWtyclpCUWJ8MW1ueGVPUmVwTnFHWFvBO8s7SGgSmFXmdbomqht1FFUk25EDLnU3NGKqe6BS …Prikaži ovu nit -
Were guidelines reviewed by any organization representing
#disability community to ensure no issues or contradictions w#ADA? Did@DisabilityMN weigh in? Experts in treating#rarediseases involving#intractablepain#chronicpain?@RareDiseases If not,#mnleg pls ensure its done.Prikaži ovu nit -
@mnhealth@MinnesotaDHS@mnsrc@SenateDFL@mnhouseDFL@mnhousegop DYK: Walmart pharmacies said to b dictating dose of med necessary#opioid Rxs 4#chronicpain#intractablepain. Ignoring Drs prof opinion & patient's#health. There r reports of this in MN. Pls look into this.https://twitter.com/AnnMcPherson81/status/1222912437835288576 …
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#mnleg#RareDisease Advisory Council was thankfully est last yr, but what's happening 2 ppl in MN w rare diseases & severe#chronicpain#IntractablePain w medical necessity for#opioid medication & their benefits outweigh risk? Force tapers! Reduced QOL!https://rarediseases.org/for-patients-and-families/information-resources/rare-disease-information/ … -
Why do we write about pain? Because we ARE
#TheIntractables !@Cpnervecenter http://centralpainnervecenter.com/intractable-pain-vs-chronic-pain/ …#IntractablePain#ChronicPain#CentralPainSyndrome -
*Community/Awareness I through Z
#IBDawareness#InaccessibilityMeans by@emily_ladau#Insulin4All#IntractablePain#InvisibleDisabilities#InvisibleIllness#ItsAccessibleBut started by@BergBronwyn#JustAskDontGrab started by@BlondeHistorianPrikaži ovu nit -
“If you can find one song, one
#poem, one#comedy sketch that can get you to smile — hold onto it, and refer back to them often. Try to find whatever you can to get you through the next second, hour, or day.” https://buff.ly/2sr0Wp5#ChronicPain#ChronicIllness#IntractablePain -
Dig into this
@DeptVetAffairs adopted@CDCgov guidelines. 1-size-fits-all in treating#ChronicPain#intractablepain. Force tapers standard. Suicides stemming from untreated & undertreated pain increasing. It's far passed time to demand humane, patient centered care. Will u? pic.twitter.com/VFNunVhwxL
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This is DISGUSTING!! This is the same place that I can’t get any Dr to recognize my
#intractablepain and prescribe meds to help me get a QOL again. The DEA is so screwed up!https://www.painnewsnetwork.org/stories/2020/1/26/arizona-drug-bust-shows-fentanyl-crisis-growing-worse-nbsp … -
@CDCgov@Talkeetna101 this is total dissent into madness.#CRPS#Cancer#ChronicPain#intractablepain#PatientsAreNotFaking@Cigna is making more $$$ at the expense of pain Pnts.#ShameOnYouhttps://twitter.com/brent_kellogg/status/1222237854077579264 … -
New blog post: https://centralpainnervecenter.com/intractable-pain-vs-chronic-pain/ … Intractable Pain vs Chronic Pain
#IntractablePain#ChronicPain -
I like the myth idea.
It definitely debunks all of the silly nonsense that PROP has suggested to the public, to cause the opioid hysteria. Informative on how #opioidmedication GIVES a#qualityoflife to#CPPs with#intractablepain -
"Severe,
#intractablepain can and does kill. The body cannot take severe, intractable pain 24/7. It attacks the body and results in medical collapse and often, sudden death…we are being sentenced to a torture…we have no alternatives." https://buff.ly/2tTSvmT#opioidhysteria -
“Persons who suffer with chronic and
#intractablepain face widespread misunderstanding of the difference between physical dependence…to treat their chronic health conditions, and addiction… One is not the equivalent of the other.” https://buff.ly/366a5BA#opioidhysteria#cpp -
“Like so many chronic and
#intractablepain patients, I have tried everything under the sun…I have never abused my medication…Yet, I am tortured… I do not know how much longer my body or my person can physically survive the unending agony.” https://buff.ly/2tG6pZB#opioids#cpp -
Denied proper pain care? Are you an
#untreated or#undertreatednpain patient or a#caregiver of someone who is? The AMA wants to hear your story. Please share at the email below and RT widely.#painpatientsvote#EDS#Chiari#IIH#CPP#ChronicPain#intractablepain#cancer#crpshttps://twitter.com/drpammys/status/1196919822988259330 … -
FYI for national members who live in Minnesota and/or who have family & friends in Minnesota.













SAVE THE DATE!
PUBLIC MEETING/FORUM
#MINNESOTA#CHRONICPAIN#INTRACTABLEPAIN Monday, December 2nd 7 p.m. to 8:30 p.m.@DanBoon63784314
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