Rezultati pretraživanja
  1. 25. sij

    We here for ! In a recent swim campaign, They featured a model with - an inherited skin disorder in which dead skin cells accumulate in thick dry scales on the skin's surface. . "I’m legit shaking typing this... New work featuring ME for swimwear.

  2. prije 10 sati

    Did you ever wonder what happens at FIRST's National Conference? Take a look and please join us for our signature event. You will not be disappointed!

  3. 4. velj

    7. Antara sahabat kami, Mawaddah Athilah juga merupakan fighter. Boleh baca artikel penuh disini

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  4. 3. velj
  5. Following on from my tweet about me not needing to be notified about every bit of ableism & bad reporting on that you see, I wrote this post on FB and Insta. You can be a good ally without broadcasting it. Thanks! Read:

    Image: a woman with a red face and shoulder length dark curly hair, wearing a bland and white floral top, smiling. Above her head is black text on two strips of white: “you can be a good ally without broadcasting it”.
  6. 28. stu 2019.
  7. 19. stu 2019.

    "What happens when children of migrants have disabilities? shares her thoughts on appearance activism, access and inclusion and becoming a successful author. "

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  8. X-Linked Icthyosis on a black/white child. Icthyosis causes dry, thickened, scaly skin varying in severity from minor to debilitating or life threatening. Since they are genetic, they are not currently curable, but symptoms can be treated.

  9. 19. ruj 2019.

    YES!!!! As woman with epidermolytic ichthyosis this is an amazing sight to see!

  10. 18. srp 2019.

    Carly says she wrote ‘Say Hello’ because there wasn’t a book about written by a person with ichthyosis - it’s the book that she needed to read when she was growing up

  11. 27. lip 2019.

    Still can't believe she's actually 30! How!? Think she had a great day, I know she can't wait til her party 😁😁

  12. Prof. Edel O' Toole will be giving a keynote talk as part of the Charles Seminar Series titled 'The Palmoplantar Keratodermas', this Friday in the Charles Seminar Room. To livestream email charles@ucd.ie

  13. 14. lip 2019.

    We submitted an IND for a new candidate, KB105, for patients with the TGM-1 deficient autosomal recessive congenital ichthyosis (“ARCI”). Read the full release here:

  14. My memoir Say Hello is available as a paperback and ebook in AU & NZ right now, but it can be shipped internationally, & it’s available as an worldwide! Details 💗🧡

  15. 7. svi 2019.

    PLEASE give support RT's likes, to the amazing raising awareness 4 . Mel lives bravely with this awful illness but ploughs on as much as she can we a big smile

  16. 5. svi 2019.
  17. This paper describes new guidelines for managing complications of congenital ichthyoses in order to improve outcomes and patient quality of life.

  18. 13. tra 2019.

    Spanish wisdom being shared at eni meeting!

  19. evening meeting: from Adam Rubin: pagetoid spread common in & traumatised . Ever diagnosed ? Neither have I! in changes

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