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New hope for patients with primary
#hyperoxaluria type 1. Read the news on ERA-EDTA Website! http://bit.ly/2RuYKqv#oxalatepic.twitter.com/K6UJriOgTs
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Join us tomorrow as we walk for awareness
#hyperoxaluria 9:30am Saturday, September 28th. pic.twitter.com/ouhG93NEpf
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Thrilled to share that we’ve closed our Series A at
@novomebio and are excited to push our lead#hyperoxaluria program to the clinic! If you’re interested in engineering medicines at the interface of#syntheticbiology and the#microbiome, feel free to reach out - we’re hiring!https://twitter.com/novomebio/status/1214594146184257536 … -
Congrats to the
@synlogic_tx team on this milestone! Also congrats on the progress announced today in advancing candidates into the pipeline for#hyperoxaluria and#MSUD. Need more clinical data, but the future of living medicines is looking bright$SYBXhttps://twitter.com/aoifemlbrennan/status/1215252348869795840 …
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The first clinical sign of
#hyperoxaluria is often a#kidneystone, but initial presentations can vary. Patients with severe hyperoxaluria may have recurrent, infrequent or no kidney stones, yet still develop#CKD. Learn more: https://bit.ly/2RXQnCR -
We're pleased to announce today that we've initiated a rolling submission of a New Drug Application (NDA) to the
@US_FDA for lumasiran, an investigational#RNAi therapeutic for the treatment of primary#hyperoxaluria type 1 (PH1).#raredisease -
Enteric
#hyperoxaluria: an important cause of end-stage#kidney disease http://ow.ly/ZFC0r#ESKDpic.twitter.com/nVN0AaUifH
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The inaugural post of the
#KidneyTransplant Series: A Case of Primary#Hyperoxaluria Type 1 & Combined Liver-Kidney Transplant#LiverTransplant@beans_sam@LVRiella@WUNephrology https://www.renalfellow.org/2020/01/31/a-case-of-primary-hyperoxaluria-type-1-combined-liver-kidney-transplant/ …pic.twitter.com/ZVtQYrK38s -
People who may have the
#raredisease primary#hyperoxaluria type 1 (PH1) and their families can talk to their doctor about Alnylam Act’s no-cost, third-party genetic testing & counseling programs. Alnylam Act may help accelerate or confirm a PH1 diagnosis. -
Clinical features of genetically-confirmed patients with primary
#hyperoxaluria identified by clinical indication versus familial screening http://ow.ly/MnuE30q1NUd@Kidney_Int@davidsas1 et al -
The next PH1 of a Kind video has arrived! Watch as Asha and her grandmother from Egypt visit the doctor, and Asha learns about why frequent doctor visits are so important for people living with the
#raredisease PH1 (primary#hyperoxaluria type 1). Co-developed w/@OHFtweet -
Videos increase awareness of
#hyperoxaluria type 1 (PH1). https://www.mmm-online.com/home/channel/campaigns/alnylam-makes-rare-disease-education-accessible-to-kids-with-animated-videos/ …#hcsm#pharma#rarediseases -
Wonderful straightforward study supporting further evaluation of LDH5 as a therapeutic target for hyperoxaluria. Congrats Emmanuel !
#kidneyhealth#hyperoxaluria#therapy@CoRaKiD_Inserm@Sorbonne_Univ_https://twitter.com/CoRaKiD_Inserm/status/1131136915233738753 … -
#RareDisease Thanks Kim & Julie@OHFTweet for inviting me to#oxalosis#hyperoxaluria conference. Fabulous community, great info & committed docs, HCPs & researchers! Happy 30th Anniversary!@EparentConnect@teaminspire@PPALSorg@_OurOdyssey_ -
Excited for UCSD to be a research site for studying kidney stones in patients with enteric
#hyperoxaluria. Enrolling soon for uriROX-2 Phase 3 trial for reloxaliase@AllenaPharma@YSL_MD#KidneyStone@roger_sur@UCSDHealth -
Act for celiac disease! If you are 18 years or older and have had kidney stones caused by your celiac disease, you may qualify for a new clinical research study.
#hyperoxaluria#celiacdisease http://ow.ly/35lF30nGYlj pic.twitter.com/y9knev9LFp
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Hemolytic Uremic
#Syndrome in an Infant with Primary#Hyperoxaluria Type II: An Unreported Clinical Association
Elisabetta Valoti @MarioNegriIRCCS
https://www.karger.com/Article/Abstract/497823 …pic.twitter.com/D4zrfkU4Ph
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It's
#RareDiseaseDay and the#KidneyHealthInitiative is catalyzing development of new therapies for rare#KidneyDiseases with projects on#hyperoxaluria,#IgAnephropathy, and#FSGS. Learn more: https://khi.asn-online.org/projects@RareDiseases@IGANFoundation@nephcure@OHFTweetpic.twitter.com/LmgjzQckqJ
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Educational Review
Role of pediatric nephrologists in the work-up and management of kidney stones
https://link.springer.com/article/10.1007/s00467-018-4179-9 …
Shareable link: https://rdcu.be/bggy5
@SchulichMedDent@umiamimedicine#kidneystones#nephrolithiasis#urolithiasis#hypercalciuria#hyperoxaluria pic.twitter.com/fD1DNX2gn8
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