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  1. prije 20 sati
  2. 3. velj

    Have you or your loved one been diagnosed with ? Stay up to date on the latest news and resources for patients, family members and caregivers to help navigate important next steps. Register for the newsletter:

  3. 3. velj

    Do you have a family history of or have clinical symptoms of hATTR amyloidosis with polyneuropathy? This new year, take an active role in your health by talking to your family about the condition. For tips, click here.

  4. A diagnosis can be overwhelming, but you are NOT alone! You have the support of our community & resources available to guide you on this new journey. Download our introductory brochure for patients, caregivers & families today:

  5. 31. sij

    We have a new Hereditary ATTR (hATTR) Amyloidosis tool to help identify the common signs and symptoms. Awareness of is important as early detection is the key to optimal management. …/hereditary-amyloidosis-tools-and-handouts

  6. 30. sij

    How many people worldwide are estimated to have ?

  7. patients require early & accurate diagnoses due to the disease's rapid, natural progression. Learn more about the & treatment options available by visiting our website. 

  8. 15. sij

    Save a virtual seat to attend live or watch on-demand:

  9. 14. sij

    Expert consensus recommendations to improve diagnosis of ATTR amyloidosis with polyneuropathy, , , et al, in Journal of Neurology ()

  10. 2. sij

    “Living a Rare Life” is the story of one family’s journey to unlock the mysteries of a life-threatening genetic called and how examining their health history across generations proved to be critical.

  11. 9. pro 2019.

    Thanks for being focused on serving patients. It been our pleasure to help educate about . Many thanks to our many sorority and faith-based partners who've made these program significant.

  12. 5. pro 2019.

    Atypical peripheral neuropathy? Cardiomyopathy? Think Dr Sami Khella & Brian Schoenfeld review likely under diagnosed in the US with an estimated prevalence of 1:207 😳 that's more common than BRCA! With a treatment early diagnosis is key!

  13. hATTR: l’efficacia della terapia con oligonucleotidi antisenso. Guarda l'intervista al dr. Marco Luigetti, neurologo Fondazione Policlinico Gemelli di Roma.

  14. 29. lis 2019.

    Our new study on the genetic architecture of and is online on Human Genetics. We used data to investigate the phenotypic spectrum of coding and non-coding variants.

  15. Support Groups so proud to hold the 6th biennial support meeting in Chicago Area. See everyone at the Meet and Greet tomorrow night.

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  16. 10. lis 2019.

    We are pleased to announce that we’ve filed a New Drug Application (NDA) in Brazil for our investigational therapeutic for the treatment of with polyneuropathy. If approved, this will mark our first product to be launched in LATAM.

  17. 3. lis 2019.

    New article describes the "red flags" for in heart failure, and recommends genetic testing for a definitive diagnosis.

  18. 28. ruj 2019.

    Alnylam Assist provides patients in the U.S. prescribed our therapy with a broad range of services from answering questions about insurance coverage to financial support for eligible patients.

  19. 21. ruj 2019.

    30 years later & over 40 drugs in the pipeline, the treatment of rare & common diseases like & has begun to change all due to the remarkable people behind the life-changing science of Ionis And this is only just the beginning

  20. Prikaži ovu nit

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