-
Have you or your loved one been diagnosed with
#hATTR#amyloidosis? Stay up to date on the latest news and resources for patients, family members and caregivers to help navigate important next steps. Register for the@changehattr newsletter: https://www.hattrchangethecourse.com/stay-up-to-date/ …pic.twitter.com/s4lNAD4qKB -
Do you have a family history of
#hATTR#amyloidosis or have clinical symptoms of hATTR amyloidosis with polyneuropathy? This new year, take an active role in your health by talking to your family about the condition. For tips, click here. -
A
#hATTR diagnosis can be overwhelming, but you are NOT alone! You have the support of our#amyloidosis community & resources available to guide you on this new journey. Download our introductory brochure for patients, caregivers & families today: http://bit.ly/2YmiZqW pic.twitter.com/5yYKbWzpcH
-
We have a new Hereditary ATTR (hATTR) Amyloidosis tool to help identify the common signs and symptoms. Awareness of
#hATTR is important as early detection is the key to optimal management. https://pcna.net/ …/hereditary-amyloidosis-tools-and-handouts -
How many people worldwide are estimated to have
#hATTR#amyloidosis? -
#hATTR#amyloidosis patients require early & accurate diagnoses due to the disease's rapid, natural progression. Learn more about the#raredisease & treatment options available by visiting our website. http://bit.ly/2P7456P pic.twitter.com/3Kzcu4Rpl0
-
Save a virtual seat to attend live or watch on-demand: https://bit.ly/3a02ZSq
#hATTR#ATTRv#amyloidosis -
Expert consensus recommendations to improve diagnosis of ATTR amyloidosis with polyneuropathy,
@UnivParisSaclay,@Amyloidosis_ARC,@MayoClinic et al, in Journal of Neurology (@TheNeuroNetwork) https://link.springer.com/article/10.1007%2Fs00415-019-09688-0 …#hATTR#amyloidosis#diagnosis#polyneuropathy#neuropathypic.twitter.com/2Q9wKvApZ4
-
“Living a Rare Life” is the story of one family’s journey to unlock the mysteries of a life-threatening genetic
#raredisease called#hATTR#amyloidosis and how examining their health history across generations proved to be critical. -
Thanks
@Alnylam for being focused on serving patients. It been our pleasure to help educate about#hATTR#amyloidosis. Many thanks to our many sorority and faith-based partners who've made these program significant.#BlackHealthMatters https://twitter.com/Alnylam/status/1202956124254883840 …pic.twitter.com/sDhZ4sha0z
-
Atypical peripheral neuropathy? Cardiomyopathy? Think
#amyloidosis Dr Sami Khella & Brian Schoenfeld review#hATTR likely under diagnosed in the US with an estimated prevalence of 1:207
that's more common than BRCA! With a treatment early diagnosis is key! #nergg -
#Amiloidosi hATTR: l’efficacia della terapia con oligonucleotidi antisenso. Guarda l'intervista al dr. Marco Luigetti, neurologo Fondazione Policlinico Gemelli di Roma.#hATTR#Amyloidosishttps://youtu.be/N4aLTqvSq7g -
Our new study on the genetic architecture of
#ATTRm and#ATTRwt is online on@SpringerNature Human Genetics. We used@uk_biobank data to investigate the phenotypic spectrum of#TTR coding and non-coding variants.#amyloidosis#hATTR#amyloidosisawarenesshttps://link.springer.com/article/10.1007/s00439-019-02078-6 … -
#Amyloidosis Support Groups so proud to hold the 6th biennial#ATTRwt#hATTR support meeting in Chicago Area. See everyone at the Meet and Greet tomorrow night. pic.twitter.com/kt79m8vzDN
Prikaži ovu nit -
We are pleased to announce that we’ve filed a New Drug Application (NDA) in Brazil for our investigational
#RNAi therapeutic for the treatment of#hATTR#amyloidosis with polyneuropathy. If approved, this will mark our first product to be launched in LATAM. -
New
@JACCJournals article describes the "red flags" for#hATTR#amyloidosis in heart failure, and recommends genetic testing for a definitive diagnosis. https://invit.ae/2MeJZEs pic.twitter.com/2XNr6os69v
-
Alnylam Assist provides patients in the U.S. prescribed our
#hATTR#amyloidosis therapy with a broad range of services from answering questions about insurance coverage to financial support for eligible patients.pic.twitter.com/kHRGCqzh2ULearn about how Alnylam Assist Case Managers help -
30 years later & over 40 drugs in the pipeline, the treatment of rare & common diseases like
#SMA#hATTR &#FCS has begun to change all due to the remarkable people behind the life-changing science of Ionis And this is only just the beginning#ThrowbackThirty#TheIonisJourneypic.twitter.com/i0S7doJtgt -
Evolution of
#hATTR management@escardio@ESCardioNews#ESCcongress2019#ESCCongress#ESC2019pic.twitter.com/RbmSDuuoCq
Prikaži ovu nit
Čini se da učitavanje traje već neko vrijeme.
Twitter je možda preopterećen ili ima kratkotrajnih poteškoća u radu. Pokušajte ponovno ili potražite dodatne informacije u odjeljku Status Twittera.