Rezultati pretraživanja
  1. 25. ruj 2016.

    My girl looks stunning on the carpet for the Event last night in Huntington Beach💥

  2. 12. velj 2019.
  3. 24. lip 2015.
  4. 19. ruj 2014.

    ~80% of rare diseases are genetic.

  5. 3. lis 2018.

    Here at the at the to finding out what I can do for my new diagnosis To get more information for me and other people around me who are suffering more that me. I LOVE people. – mjesto: Hotel Irvine

  6. 28. kol 2019.

    Modelis will be talking on sept 20th at the next Summit from in San Diego, CA. We are excited to meet more people and initiate more venture philantropy partnerships with patients. See you there.

  7. Tomorrow's RARE Revolution Magazine is hosted by - Please do support them and share and like their posts

  8. February 29th is but everyday is for children and adults living with Follow us during the month of February as we here from some of our SKS families.

  9. 1. ožu 2018.

    The Ryan Foundation was in attendance at the Global Genes event of The RARE Carousel of Possible Dreams last night. We continue to support Global Genes to make a difference in the Rare Disease community.

  10. 4. lip 2017.
  11. 21. ruj 2015.

    New article - Atlantic by about my daughter Lilly

  12. 6. ožu 2017.
  13. 17. ruj 2017.

    Thanks for organizing an educational and hope-filled conference focused on helping rare disorders like ours!

  14. World Rare Disease Day! 💕 Life with our rare Lucy is joyful, trying, exhausting, hilarious, sweet, spirited, scary, loving, frustrating, and beautiful and we wouldn't change it for anything. 💕

  15. 28. velj 2017.

    PBC is just 1 of over 7,000 rare diseases. We're raising our voices for Rare Disease Day.

  16. 3. ožu 2016.
  17. 20. ruj 2019.

    Excellent session-Patient and Caregivers: Shaping Clinical Drug Development by , James Valentine and Alison Skrinar.

  18. 28. velj 2017.

    Lilly Grossman promoting RareDiseaseDay2017 by handing out blue ribbons

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