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My girl
@BrookeLewisLA looks stunning on the carpet for the#GlobalGenes Event last night in Huntington Beach
pic.twitter.com/RWCIBs8KTe
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Check out the new
#globalgenes website!!!#rarediseasehttps://twitter.com/GlobalGenes/status/1095047372034531328 …
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This is why I care about rare
#15forRare#GlobalGenes@GlobalGeneshttps://www.youtube.com/watch?v=wNz4Kmik1FI&feature=youtu.be … -
~80% of rare diseases are genetic.
#NSGC2014#globalgenes -
Here at the
#globalgenes at the#2018GGSummit#CareAboutRare to finding out what I can do for my new diagnosis#Hypophosphatasia#FND To get more information for me and other people around me who are suffering more that me. I LOVE#rare people.#RarePatientAdvocacySummitpic.twitter.com/440vgham0i – mjesto: Hotel Irvine
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Modelis will be talking on sept 20th at the next
#RarePatient Summit from#GlobalGenes in San Diego, CA. We are excited to meet more people and initiate more venture philantropy partnerships with patients. See you there. pic.twitter.com/KenWJPoZlp
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Tomorrow's RARE Revolution Magazine
#tuesdaytakeover is hosted by@GlobalGenes - Please do support them and share and like their posts#GlobalGenes#RareDisease#SocialMediaTakeoverpic.twitter.com/5RBC4Df9Yj
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February 29th is
#RareDiseaseDay but everyday is#RareDiseaseDay for children and adults living with#smithkingsmoresyndrome Follow us during the month of February as we here from some of our SKS families.#NORD#globalgenes#Sksfoundation#globaldelay#epilepsy#autismpic.twitter.com/f2Vk9igr1r
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The Ryan Foundation was in attendance at the Global Genes event of The RARE Carousel of Possible Dreams last night. We continue to support Global Genes to make a difference in the Rare Disease community.
#RareDisease#GlobalGenes pic.twitter.com/an9yTt9FaX
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My son has been gone for 29 days.
#HugsForHope#RareDisease#GlobalGenes#LCH#HistioAware#HistioAngel#CareAboutRare#DonateLife#covfefepic.twitter.com/q0VDqweXmg
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New
#raredisease article - Atlantic http://theatln.tc/1KJ6JXs by@edyong209 about my daughter Lilly#genomics#ADCY5#globalgenes#dyskinesia -
Got my
@GlobalGenes package in the post today!
#careaboutrare#chronicillness#invisibleillness#chiarimalformation#mcad#globalgenes pic.twitter.com/iR2wl4kJVL
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Thanks
#GlobalGenes for organizing an educational and hope-filled conference focused on helping rare disorders like ours!#CAREaboutRAREpic.twitter.com/5USLLjAsXW
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World Rare Disease Day!
Life with our rare Lucy is joyful, trying, exhausting, hilarious, sweet, spirited, scary, loving, frustrating, and beautiful and we wouldn't change it for anything.
#WRDD2018#globalgenes#lucyjudelove#wolfhirschhornsyndromeawareness pic.twitter.com/qaybeSKgVr
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Good mmoorrnniinngg
#SanDiego.#ordindia and#ordiusa is all set for#2019GGSUMMIT. Looking forward to meet all at the#PowerhouseOfRareDiseaseKnowledge#globalgenes. Thanks@globalgenes@nicoleboice@Harsharajasimha@Prasannashirol@ORDIndia @ordiusapic.twitter.com/Srxb4vqQp6
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PBC is just 1 of over 7,000 rare diseases. We're raising our voices for Rare Disease Day.
#RareDisease#alfsma#liveradvocate#globalgenes https://twitter.com/PBCers/status/836559783725510665 …
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Student living w/ rare disease inspires others. http://bit.ly/1QLwiWi
#GlobalGenes#raredisease#inspirationpic.twitter.com/Rpy4il1DWH
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#2019GGSUMMIT#globalgenes Excellent session-Patient and Caregivers: Shaping Clinical Drug Development by@NeenaNizar, James Valentine and Alison Skrinar.@GlobalGenes -
Lilly Grossman promoting RareDiseaseDay2017 by handing out blue ribbons
@WhittierCollege#globalgenes#ADCY5#DOCK3pic.twitter.com/bVEhdH5xIw
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