-
Osobe Vidi sve
@me_and_my_EDS 35,F Artist (Art&Photography&Graphic Design) fighting
#EhlersDanlosSyndrome,#POTS&more. Hoping 2 help w/awareness,support&info 4 the#chroniclyawesome as I go!Halifax, Canada
-
Each type of
#EhlersDanlossyndrome is defined as a distinct problem in connective tissue: what the body uses to provide strength & elasticity. Connective tissue is found throughout the body, and Ehlers-Danlos syndromes are structural problems. https://buff.ly/2O4Xw5G -
1/20/2020, I married this man. He’s not just my best friend- he’s my biggest supporter in
#EhlersDanlosSyndrome. His endless patience, persistence, and willingness to always jump into action help me to live a better quality of life as we cope with this complex syndrome as a team. pic.twitter.com/vChy5We7K5
-
Woke up yesterday. First step out of bed something in my foot crunched. Not able to weight bear.
#EhlersDanlosSyndrome -
I love this! I’m recently disabled and home bound (within the last 5 years) with
#EhlersDanlosSyndrome at age 43 I was extremely active and independent. Losing the self I once knew is very hard. It helps to have inspiration from someone who also struggles with invisible illness -
How my neck feels like after a day of working on the computer..
#EhlersDanlosSyndrome#invisibleillness pic.twitter.com/RJ8i7ZhX9R -
Sharp pain and soreness on both sides of my left knee. What did I do? I stood up. Welcome to the world of
#ehlersdanlossyndrome#EDS -
Professor Rodney Graham saying it as it is.. A huge loss to the NHS and patients with
#EhlersDanlosSyndrome#HSD#vEDS#hEDS who will never be able to experiencehis clinical brilliance.#PatientExperiencepic.twitter.com/t4GuUXGeZE
-
Does anyone know what kind of medicine anesthesiologists use during surgery besides anesthesia? Asking because whatever they use REALLY helps my pain levels to make them almost nonexistent.
I want to feel this way all of the time. #medicaltwitter#EDS#ehlersdanlossyndrome -
Dislocations suck - this is certainly true today
#EDS#EhlersDanlosSyndrome#hypermobility pic.twitter.com/fCfZyJIpVH
-
-
And we are off! Lets unravell fatigue in pediatric HSD and hEDS.
#EhlersDanlosSyndrome#disability@TheEDSociety@Ver_EDS@hsrotterdam@jeroenoversier@Macquarie_Uni@NVFK@KCZorginnovatie@kcbuijs@srhilberink@LaraBloompic.twitter.com/FhX1yqU42I -
"Hi, I'm a walking
#EhlersDanlosSyndrome train wreak. I'm here to complicate your job."Prikaži ovu nit -
I can't believe even cats get
#EhlersDanlosSyndrome As a zebra myself we will keep pushing through every day!

-
As a human with
#EhlersDanlosSyndrome, that part got to me.
Didn't know until very recently that cats could have it too! -
Another weekend draws to an end. Battling
#cancer is a full time job on it's own, throw in my#EhlersDanlosSyndrome,#fibromyalgia & other medical issues & it's like being a multiple business owner. No matter how tired I get, I'm#stillfighting#dyingtobeatcancer#fuckcancer pic.twitter.com/fKkMdUf4Qk
-
Recently diagnosed with
#EhlersDanlosSyndrome. Hyper flexible joints that were a quirk are one symptom of#hEDS. When the stuff literally holding you together (collagen) is faulty, all bodily systems can get messed up, so every dr needs to understand this to not cause more harm.pic.twitter.com/K77wtJGp20
-
He has
#EhlersDanlosSyndrome just like I do
-
I’m talking range of movement in hypermobility. Let’s teach a felt sense of control by reducing range. Once control is there, range comes second. Less pain, less strain.
#EhlersDanlosSyndrome#Hypermobility#Exercisepic.twitter.com/i2VoILL1yW
-
My hips were so messed up over night the reset sounded like I dropped a bowling ball on the floor
#spoonie#EhlersDanlosSyndrome -
A job has come up at my place of work. It's ideal for me, not because of money but because I have a background in psychology and counselling. My
#EhlersDanlosSyndrome plus other issues mean I can't even entertain the thought of doing it. I'm gutted.
Čini se da učitavanje traje već neko vrijeme.
Twitter je možda preopterećen ili ima kratkotrajnih poteškoća u radu. Pokušajte ponovno ili potražite dodatne informacije u odjeljku Status Twittera.