Rezultati pretraživanja
  1. 2. velj

    “That’s the thing with those who are and have — we become experts in hiding our pain from other people… I’m in terrible pain all the time, but I don’t want you to feel awkward.” Why I Say 'I’m OK' Despite

  2. prije 2 sata

    Just because I dont look sick doesnt mean I am not sick. I'm still sick.

  3. Caucus day for the disabled means driving 4 hours to see a doctor and then praying you have enough energy to caucus tonight. No worries though my husband said he would carry me in if need be.🥰🌹🐦💖

  4. 27. sij

    “As all of us who are know, our diseases can progress. But when they do, it can throw us into a complete tailspin… Our norm is constant , constant …constantly subject to change. And that’s just…our disease.”

  5. 2. velj

    Tomorrow we will be posting a casting call for a new game starting March! If you’re a , , &/or fan looking to join a stream, follow us for updates! (Every condition is valid & welcome! Visible or invisible, formal Dx or not!)

  6. So any of my fellow peeps struggle to keep perspective on what’s “normal?” Today, a big chunk of hair fell out of my head and I didn’t think about it until now when I realize that... just doesn’t happen to most people? But at least once a week for me??

  7. prije 3 sata
  8. ✊💜🔥 Hope it goes as smoothly as possible. Election day will be a gauntlet for me too, so I hear ya! 💪

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  10. prije 13 sati

    Last Monday it took 3 hrs to get ready for work, today it took an hour. I don’t know until I’m awake how much pain or fatigue I’ll have. That’s what it’s like living with & possible autoimmune.

  11. Nothing like taking your meds and not knowing the next time you’ll be able to afford them and you very well may die first.

  12. prije 18 sati

    Every single finger and my thumbs will eventually have these. Maybe the pain will lessen.

  13. 2. velj

    🚨SUPER IMPORTANT🚨 New video uploaded to my 📲 channel (link in bio) on what it is like right now for me to be living hour to hour⌛️waiting for an emergency🚑 slot to open up with the surgeon🔪 for a and !

  14. 2. velj

    my mind, at ease for once: “what a glorious day to finally sit down and write!” my body, a brat: “hows about a sweet sweet migraine to go with that inspo?”

  15. 1. velj

    Being is exhausting. I've been sick for two months. I thought I was starting to improve over the last couple weeks, but the last couple days have been hell. I just want it to stop. I just want to be okay again.

  16. 31. sij
  17. I'm going to go back to bed, curl up in a bal & just... Cry. I've had enough of being & the never ending tests I seem to have. I highly doubt anyone will see this but yeah. Screw this. For once, I would just love to have no dislocations, chronic pain etc...

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