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#Chordoma is a#raredisease that requires expertise to treat properly. If it is suspected or diagnosed, the most important thing is to find a medical center w/ experience treating chordoma patients. Why?@TheJNS explains using evidence on patient outcomes https://www.ncbi.nlm.nih.gov/pubmed/31675723 pic.twitter.com/8re3Lsduzt
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Glad to see you back on the field, Jose!
@heraldscotland#Liverpool#chordoma “A year ago I had a tumour in my head, I thought I was dying, and now I’m playing here in front of 30,000 people. I can be grateful and happy to be part of this,” -Jose Enrique https://www.heraldscotland.com/sport/football/17965523.jose-enrique-thrilled-liverpool-return-brain-tumour-scare/ … -
Gage Krupovage, an 8 yo
#chordoma patient from Oklahoma, was made an honorary soldier by the 434th Field Artillery Brigade early this month. Check out his story. Thinking of you and your family, Gage and fighting for all the#chordoma warriors out there. https://www.newsweek.com/military-personnel-make-young-boy-terminal-tumor-honorary-soldier-viral-video-1455823 … -
#Chordoma -Difficult to diagnose early due to vague symptoms-median duration before diagnosis 2 years Sacral chordoma: a diagnosis not to be sat on?https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2269011/ … Early MRI scan may help as X-rays are non-specific#SarcomaAwareness@BCRT Thanks for sharing Robert's storyhttps://twitter.com/BCRT/status/1116757119305314305 …
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The diagnosis is a metastatic pleomorphic
#adenoma, i.e. carcinoma ex pleomorphic adenoma. Sure does look like a#chordoma, including S100+, but brachyury isn't nuclear. FGFR1-PLAG1 fusions are found in pleomorphic adenoma, not chordomas. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4768723/ …Prikaži ovu nit -
Aaron McMahon, the young
#chordoma patient from Ireland who raised >$100K to fund his treatment in the US is back in the news. He just underwent a successful surgery@UPMCnews and celebrated his 18th bday! https://bit.ly/2LOROj1 Congrats Aaron and best wishes for your recovery! -
The importance of the 100k genome project for researching the rarest of diseases https://bit.ly/2savz1q
#chordoma#rarecancerpic.twitter.com/7pLaLzxLUx
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Cheers to UK mom Emma Holloway, who is battling
#chordoma while training for a half-marathon supporting@ChordomaUKhttp://bit.ly/2eljprx -
#CCRCancerAdv: Study evaluating#immunotherapy checkpoint inhibitor in#chordoma#NotRare2Us http://1.usa.gov/22h0X62 pic.twitter.com/cItbzLKZSL
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Sending good thoughts to
#chordoma#patient Peter Douthwaite in#London@DailyMirror http://bit.ly/1W2xbC0 support@chordoma.org is here -
“I want to open the
#chordoma door for patients. It’s not OK to feel ignored." http://www.thestar.com/news/insight/2014/12/14/those_with_rare_cancers_like_chordoma_feel_lost.html …@ChordomaFDNpic.twitter.com/TPaxOn9DeL
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A Young Man's Push To Get Scientists To Understand His Rare
#Cancer by@matthewherper http://onforb.es/19EBLL3 via@forbeshealth#chordoma
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