Rezultati pretraživanja
  1. 6. stu 2019.

    is a that requires expertise to treat properly. If it is suspected or diagnosed, the most important thing is to find a medical center w/ experience treating chordoma patients. Why? explains using evidence on patient outcomes

  2. 28. lis 2019.

    Glad to see you back on the field, Jose! “A year ago I had a tumour in my head, I thought I was dying, and now I’m playing here in front of 30,000 people. I can be grateful and happy to be part of this,” -Jose Enrique

  3. 29. kol 2019.

    Gage Krupovage, an 8 yo patient from Oklahoma, was made an honorary soldier by the 434th Field Artillery Brigade early this month. Check out his story. Thinking of you and your family, Gage and fighting for all the warriors out there.

  4. 12. tra 2019.

    -Difficult to diagnose early due to vague symptoms-median duration before diagnosis 2 years Sacral chordoma: a diagnosis not to be sat on? Early MRI scan may help as X-rays are non-specific Thanks for sharing Robert's story

  5. 11. velj 2019.

    The diagnosis is a metastatic pleomorphic , i.e. carcinoma ex pleomorphic adenoma. Sure does look like a , including S100+, but brachyury isn't nuclear. FGFR1-PLAG1 fusions are found in pleomorphic adenoma, not chordomas.

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  6. 26. srp 2018.

    Aaron McMahon, the young patient from Ireland who raised >$100K to fund his treatment in the US is back in the news. He just underwent a successful surgery and celebrated his 18th bday! Congrats Aaron and best wishes for your recovery!

  7. 19. lip 2018.

    The importance of the 100k genome project for researching the rarest of diseases

  8. 21. lis 2016.

    Cheers to UK mom Emma Holloway, who is battling while training for a half-marathon supporting

  9. 19. svi 2016.

    Sending good thoughts to Peter Douthwaite in support@chordoma.org is here

  10. 14. pro 2014.
  11. A Young Man's Push To Get Scientists To Understand His Rare by via

  12. 21. tra 2013.

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