Managing Director & Co-Founder @SyngapRF - Working everyday to drive progress for #Syngap research. #CareAboutRare
EEB Frontier's Masters Student @UMich • Animal Behavior Nerd • Rare Disease Patient • Disability Advocate • #EDS #DisabledandSTEM #CareAboutRare
President, http://KIF1A.ORG . Stubborn optimist. Ultra-rare disease mom & advocate. #TeamKIF1A #TeamParker #CareAboutRare http://kif1a.org
Web-designer, patient advocate, #DragonBoat coach, proponent of #NewbornScreening, Executive Director of @pompecanada #CareAboutRare
Leading patient advocacy organization working to eliminate the challenges of rare disease faced by 400 million people worldwide. #CareAboutRARE #RareDisease
Official Twitter account of the NCI Center for Cancer Research Pediatric Oncology Branch. Privacy: http://go.usa.gov/xyJZF #ChildhoodCancer #CareAboutRare
Founder/CEO of @GlobalGenes a 501c3 working to eliminate the challenges of #RareDisease faced by 350M people worldwide. #CareAboutRARE Opinions are my own.