Rezultati pretraživanja
  1. 26. pro 2019.

    An honest and real discussion surrounding a diagnosis it feels like no one understands and the reason organizations like exist.

  2. As experts in the field, Dr. Su and her colleagues have discovered never-before-seen disorders, including a genetic susceptibility to the common cold:

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  3. 7. stu 2019.

    Scientists have spotted a secret to Centronuclear Myopathies hidden in muscle cells. Learn more about this group of rare diseases

  4. 29. lis 2019.
  5. 10. lis 2019.

    I founded to help my friend Mila who has . Science is complex. So are ethics. How do ppl decide how much to give to save the life of a friend, a family member, or a child they've never met?

  6. 7. lis 2019.
  7. 2. lis 2019.

    "It is a great honor for this large international group of collaborators to be recognized for our many accomplishments over the last several decades.” Another congratulations to IMACS for their RARE Champion of Hope Award last month.

  8. 7. ruj 2019.
  9. 1. tra 2019.
  10. 23. velj 2019.
  11. 16. velj 2019.

    Powerful, courageous and beautifully written piece by the amazing ⁦⁩ on the importance of focusing on . 1 out of 10 Americans has a rare disease and research often holds key insights for common diseases.

  12. 13. stu 2018.
  13. 6. stu 2018.

    Husband & wife with type 1 raise awareness of the . They wear "Just Ask" t-shirts to help educate the public & address misperceptions (including concerns it is contagious, which it is not).

  14. 9. lis 2018.

    Little boy from St. Louis with high fevers caused by seeks answers & potential treatments at , viewing as a home away from home

  15. 19. pro 2017.
  16. 1. ožu 2016.

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