Rezultati pretraživanja
  1. Catch up with our awareness project The Lucky Side of Things by Based in with a following has NO borders please contact us, to share your

  2. prije 23 sata

    that an impressive £142 million was invest by charities into 640 rare disease research projects in 2018 We think that's pretty great !

  3. 2. velj
  4. for the many opportunities afforded to those in need. My daughter was invited to the Las Vegas family . She had an amazing night. – mjesto: Las Vegas Ice Center

  5. 1. velj

    1 in 17 people in the UK will be affected by a rare disease at some point in their lives. Read Alan’s story as part of the campaign initiated and funded by . For more info. visit: 🙏🏽🙏🏼

  6. 31. sij

    Did you know we host an via next Friday the 7th? If you haven't registered yet, go to If you did register already, please view our guidelines so we can make it a good experience for everyone

  7. 31. sij

    Cholesterol to the rescue: An alternative approach to treating SCA type 3 using gene therapy

  8. 31. sij

    Translation: PTC Therapeutics announced at the 38th annual J.P. Morgan Healthcare 2020 conference, the continuation of PTC-FA gene therapy for which should lead to clinical trials in the 3rd quarter of 2020

  9. 30. sij

    Hey , I have a question for those of you with a uterus: do you notice your balance is off or your meds don't work as well when you're in your period (or PMSing)? I have and tend to fall down more during that time of the month, wondering if it's just me.

  10. We are in the with as group are busy with a new under , keep following our progress, IG = FB =Ataxia and Me

  11. 30. sij

    Carmo Costa and her team find genes that regulate the SCA3 polyglutamine disease protein, ATXN3. Potential therapies therein! Druggable genome screen identifies new regulators of the abundance and...

  12. Odgovor korisniku/ci

    sending wishes from hope all is OK

  13. 30. sij

    I fell on my vaccuum cleaner this morning...

    Eufy round black robot vaccuum with the top all busted and cracked
  14. Thank you ! A terrific opportunity to present on a patient whom we learned so much from. And thank you to friends, colleagues and mentors from for the warm welcome back to the .

  15. 29. sij

    To all those here without : What would you like to know?

  16. In the JANUARY ISSUE: Predictors of loss of ambulation in 's

  17. 29. sij

    The phase 2 clinical trial of CAD-1883 will assess the efficacy and safety of the drug compared to placebo. .

  18. 29. sij

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