-
Catch up with our
#Ataxia awareness project The Lucky Side of Things by@elisability#Canada https://ataxia-aware.com/post/the-lucky-side-of-things …#kNOwATAXIA#Positive#CoordinationKingdom Based in#Wales with a#Global following#raredisease has NO borders please contact us, to share your#adventurepic.twitter.com/s0TZPeNaCi
-
#Didyouknow that an impressive £142 million was invest by@AMRC charities into 640 rare disease research projects in 2018 We think that's pretty great !#ataxia#ataxiauk#rarediseasespic.twitter.com/CgtvyPImYN
-
#dailygratitude#grateful for the many opportunities afforded to those in need. My daughter was invited to the Las Vegas#Paralympics family#hockeynight. She had an amazing night.#leukodystrophy#ataxia#pacemaker#adaptiverecreation#ActiveEveryDay#simplifiedlifestylespic.twitter.com/M3jdRwNaOT – mjesto: Las Vegas Ice Center -
1 in 17 people in the UK will be affected by a rare disease at some point in their lives. Read Alan’s story as part of the
#IAmNumber17 campaign initiated and funded by@TakedaPharma. For more info. visit: http://www.iamnumber17.org.uk https://iamnumber17.geneticalliance.org.uk/alan/
@alanROYGBIV#ataxia pic.twitter.com/zWov0iYxrx
-
Did you know we host an
#Ataxia#SupportGroup via#Zoom next Friday the 7th? If you haven't registered yet, go to http://www.hopeforataxia.org/teleconference#Register … If you did register already, please view our guidelines so we can make it a good experience for everyone http://www.hopeforataxia.org/teleconferences#Guidelines …pic.twitter.com/wOgQ7El7DR
-
YAY
#Ataxia#SPG#RareDisease on screen via@eyeforpharma webinarpic.twitter.com/ulkQ239X1W
-
Cholesterol to the rescue: An alternative approach to treating SCA type 3 using gene therapy
#Ataxia#RareDiseasehttps://scasource.net/2020/01/31/a-novel-gene-therapy-based-approach-with-therapeutic-potential-in-sca3/ … -
Translation: PTC Therapeutics
@PTCbio announced at the 38th annual J.P. Morgan Healthcare 2020 conference, the continuation of PTC-FA gene therapy for#Friedreich#ataxia which should lead to clinical trials in the 3rd quarter of 2020 https://twitter.com/Asso_Alatax/status/1223009898046414848 …
-
Hey
#DisabilityTwitter, I have a question for those of you with a uterus: do you notice your balance is off or your meds don't work as well when you're in your period (or PMSing)? I have#ataxia and tend to fall down more during that time of the month, wondering if it's just me. -
We are in the
#Pink with#Excitement as#Ataxia#Patient group#Wales#charity are busy with a new#project under#construction, keep following our progress,#media IG =@ataxia_and_Me FB =Ataxia and Me#Digital#raredisease#healthpic.twitter.com/pGhWrczqRE
-
Carmo Costa and her
@UMich team find genes that regulate the SCA3 polyglutamine disease protein, ATXN3. Potential therapies therein!#ataxia Druggable genome screen identifies new regulators of the abundance and... https://www.sciencedirect.com/science/article/pii/S0969996119303729 … -
sending wishes from
@Ataxia_and_Me hope all is OK#ouch#Ataxia -
I fell on my vaccuum cleaner this morning...
#ataxia#ThisIsAtaxiapic.twitter.com/khxjvNjDTa
-
Thank you
@NEJMCPC! A terrific opportunity to present on a patient whom we learned so much from. And thank you to friends, colleagues and mentors from@MGHNeurology for the warm welcome back to the#Etherdome.#ataxia#NEJMhttps://twitter.com/NEJMCPC/status/1221584236295131137 …
-
To all those here without
#Ataxia: What would you like to know? pic.twitter.com/XQiUndldwa
-
In the JANUARY ISSUE: Predictors of loss of ambulation in
#Friedreich's#ataxia#openaccess https://bit.ly/2t6paWf pic.twitter.com/Olkl7y8mA6
-
The phase 2 clinical trial of CAD-1883 will assess the efficacy and safety of the drug compared to placebo.
#Spinocerebellar#Ataxia. https://www.neurologylive.com/clinical-focus/investigational-spinocerebellar-ataxia-drug-get-green-light-from-fda- …
Čini se da učitavanje traje već neko vrijeme.
Twitter je možda preopterećen ili ima kratkotrajnih poteškoća u radu. Pokušajte ponovno ili potražite dodatne informacije u odjeljku Status Twittera.
PTC Therapeutics