Rezultati pretraživanja
  1. prije 11 minuta

    Did you know... The estimated out-of-pocket cost for caring for a person with is $250,000 and there are only THREE drugs currently approved by the FDA? Share these and donate today to help us create a world without ALS -

  2. WWSG Exclusive Speaker Nancy Frates () was honored to speak with and inspired them to participate in the .

  3. prije 1 sat
  4. 30,000 ... # people in US w/ ALS 150 .... # of years w/ no effective treatment for ALS 10 ... # years NurOwn stem cell treatment pending FDA approval 2-5 ... # yrs survival for avg person w/ ALS 29 ... Eric Stevens' age at Dx

  5. 1. velj

    Here we are in 2020 still talking about promising treatments for . We have got to do better. How much longer must the community suffer? How many more deaths? What is our gov’t doing for its people with ALS: Doctors, lawyers, veterans, firefighters, engineers...

  6. prije 31 minutu

    Misdiagnosis occurs because withdrawal neurological effects do resemble the real neurological disorder. Like or in my opinion. Hope I helped you

  7. Because of your support, researchers like Terry Suk are opening new doors in research to find answers about small proteins called SUMOs. Check out the clip below from Dr. David Taylor, VP Research to find out more. 👇

  8. prije 55 minuta

    they need an Executive Order now! It’s too late for my husband, but not to late for thousands more! Help them defeat ALS! Right to Try didn’t work for ALS. Drug companies just say “no”.

  9. Excited for my first IRONMAN race! This is for all the & patients out there. Puerto Rico, I'm coming for you 🔥

  10. prije 2 sata

    You had an absolutely incredible day!! Wanna help my dad who has been fighting for 32 years!!??? I am an only child grinding to be a fulltime 24/7 caregiver. With your help our dreams could be fulfilled🙏🏼. Help a brotha or 2 out here!

  11. prije 6 sati

    Learn how mutations can enhance aggregation in :

  12. prije 17 sati
  13. prije 18 sati
  14. 2. velj

    3 DAYS until the until the letter below is being delivered to the by . We need strong support behind a letter fighting for access to investigational therapies in . PLEASE ask friends and family to sign and circulate the letter.

  15. 2. velj

    Something to think about. Four members of the who all trained at the same facility in Redwood City died of . There names were Dwight Clark, Matt Hazeltine, Gary Lewis and Bob Waters. Nobody knows why.

  16. 2. velj

    Hard to watch a loved one suffer from a disease, like , day after day, knowing there are treatments with potential, but no access to them. Politicians don’t care. Big pharma doesn’t care, and organizations meant to help don’t care. Our hearts continue to break more everyday.

  17. Odgovor korisniku/ci

    It’s called the “ Failed Patients” treatment. Primary reasearcher for ALS: Corey Polen. Infrared light to repair mitochondria. A little background on infrared but there is more out there:

  18. 1. velj

    1st documented case of ALS 1869. For 150 years 80%+ die of in 5 years Treat w the urgency it deserves as an illness w NO effective approved therapies & NO survivors in 150 years.

  19. 1. velj

    No one cares about . No one cares that hundreds of thousands are suffering and going through indescribable HELL. No one cares that hundreds of thousands a year are dying premature deaths. No one cares about ALS. And it's a fucking shame.

  20. 1. velj

    Often patients will suffer from waning vocal volume limiting their ability to actively participate in their care. BCV’s active expiratory phase can assist ALS patients’ ability to speak and with less fatigue. Contact us at to learn more.

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