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#WhatExactlyIsRare
Of the 7000 #RareDisease less than 500@US_FDA approved treatments. This is why the#OpenAct is so important. Without FDA approval Insurance will not pay for the prescriptionpic.twitter.com/0g9iO5bNbL
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#WhatExactlyIsRare
There are 7,000 different kinds of #RareDisease Just over 80% of rare diseases have less than 6,000 patients Do you#CareAboutRare -
#WhatExactlyIsRare
... 1 in 10 people have a #RareDisease...affecting 30 Million Americans. That number doesnt include Spouses, children, extended family, or caregivers Do you#CareAboutRarepic.twitter.com/KDC4HnWU1S
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