-
Hope for families after breakthrough into Vanishing White Matter disease https://www.illawarramercury.com.au/story/6617405/hope-for-families-after-breakthrough-into-vanishing-white-matter-disease/?cs=12 … via
@illawarramerc#findacureforvwm#leukodystrophy#WRDD2020 -
With
@RareDiseaseDay 2020 coming up, we@Santhera take the opportunity to express our thanks and gratitude to patients, their families, caregivers and the entire#Duchenne community for their continued support.#raredisease#wrdd2020#careaboutrare#dmdhttps://twitter.com/rarediseaseday/status/1222536213942427651 …
-
#WRDD2020 is quickly approaching, what are your plans on the rarest day of the year? Find an event near you on our events hub, or share your own.#CareAboutRarehttps://globalgenes.org/events-hub/ -
Next month is World Rare Disease Day! Show you
#CareAboutRare with one of our Blue Denim Genes Ribbons.#WRDD2020#RareDiseaseDayhttps://globalgenes.org/denim-ribbons/ -
Families united are stronger together!
#CureCanavan#Families4TheCure#United4TheCure#WRDD2020 http://www.CureCanavan.org Canavan Research Illinois/Canavan Disease Research Ilyce@canavanresearch.orgpic.twitter.com/GA2rDxBKPY
-
Stay tuned for information on how we will celebrate together for
#BarthSyndrome on#RareDiseaseDay!#WRDD2020 https://www.facebook.com/barthsyndromefoundation/posts/2885816071452357 … -
29 Feb 2020 is a
#LeapYear#RareDiseaseDay - Here are key facts about#rarediseases, defined differently in the#EU &#USA.#aHUS is an ultra#raredisease, find out more https://www.ahusallianceaction.org/rare-disease-day-atypical-hus-in-2020/ …#SHUa#RareDay#WRDD2020 pic.twitter.com/wLUoKd31Fk
-
Dedicated to helping children & families affected by
#Canavan disease. accepting photos for our final presentation for#WRDD2020 until 1.31.20. If you would like more information about Canavan disease, or our mission please visit http://www.curecanavan.org pic.twitter.com/jA29oKKFpB -
Sharing in honor of World Rare Disease Day
#WRDD2020 on 2.29.20 for#CanavanAwareness Brianna 9.22.94 to 5.30.19 Ben 16 Imogen 2 HarleeGrace 10 Paul 12 Joseph 11.22.13 to 2.25.18 GraceLynne 5 Ayiza 5 Max 22#Canavan#CureCanavan http://www.curecanavan.org .pic.twitter.com/dqghkdYZLI
Čini se da učitavanje traje već neko vrijeme.
Twitter je možda preopterećen ili ima kratkotrajnih poteškoća u radu. Pokušajte ponovno ili potražite dodatne informacije u odjeljku Status Twittera.