Rezultati pretraživanja
  1. prije 19 sati

    With 2020 coming up, we take the opportunity to express our thanks and gratitude to patients, their families, caregivers and the entire community for their continued support.

  2. 30. sij

    is quickly approaching, what are your plans on the rarest day of the year? Find an event near you on our events hub, or share your own.

  3. 21. sij

    Next month is World Rare Disease Day! Show you with one of our Blue Denim Genes Ribbons.

  4. 16. sij

    Families united are stronger together! Canavan Research Illinois/Canavan Disease Research Ilyce@canavanresearch.org

  5. 15. sij
  6. 4. sij
  7. 2. sij

    Dedicated to helping children & families affected by disease. accepting photos for our final presentation for until 1.31.20. If you would like more information about Canavan disease, or our mission please visit

  8. 30. pro 2019.

    Sharing in honor of World Rare Disease Day on 2.29.20 for Brianna 9.22.94 to 5.30.19 Ben 16 Imogen 2 HarleeGrace 10 Paul 12 Joseph 11.22.13 to 2.25.18 GraceLynne 5 Ayiza 5 Max 22 .

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