Rezultati pretraživanja
  1. prije 1 sat

    Ayr Hospital where Dr Cheung promises a frail patient an MRI x3, & then doesn’t do one. Says No infection & his Jnr finds one. Gives No meds, and decides to discharge. , let’s pray nothing goes wrong eh?

  2. prije 2 sata

    - what else?

  3. 3. velj

    EXCELLENT knowledge nuggets on and being I look forward to hearing more from you at the conference Susannah! I've been trying to bring Canadian families/patients together myself for more knowledge exchange on how to get involved in legacy data creation.

    panel preview: , & I will discuss how open source principles can break down information silos, accelerate research for rare diseases, and democratize health care
    2 korisnika označavaju da im se sviđa
  4. 3. velj

    Chalk talk Today’s topic: Is your negative self talk always yours? via #undiagnosedhelp

  5. 3. velj

    Did u know? 25-35 million Americans are living with a . That’s why the Smith Family Clinic was established – to find answers for those suffering from rare & diseases w/ the power of . Get in touch today 256-327-9640

  6. 2. velj

    Come Back In 2 Weeks (You Can Be Seen in 6 Weeks) via

  7. 1. velj

    I wonder what the expected number of cases of are based on the number cases diagnosed anyone know?

  8. 1. velj

    Well last night I had a good cry. . & a little too much wine 🍷😬 We all need to relieve that pressure valve. Strength isn’t always battling on. Strength is the ability to let go too 💚

    5 replies 3 proslijeđena tweeta 35 korisnika označava da im se sviđa
  9. 31. sij

    .I saw comments on and he is RIGHT. has deep and serious problems first and foremost he is a pathological among many issues, and other mental issues.

    Gingrich: “A healthy House would strip [Schiff] of the Intelligence Committee.”
  10. 31. sij

    The pain is what keeps me going daily. I wanna know what and why my body is going through all of this. I won’t give up until I have a answer

  11. 31. sij

    I don’t know why I’m having such a hard time right now, but I know a few things need to change. I’m just trying to figure too much out at once and I can’t slow down or it’ll never happen.

    4 korisnika označavaju da im se sviđa
  12. 30. sij

    3 years ago today, the UDN PEER held its first face-to-face meeting here at ! Learn more about the PEER at

    4 proslijeđena tweeta 14 korisnika označava da im se sviđa
  13. 30. sij

    By sharing your experience about your child's you help other parents that are going through the same process. Share4Rare collects all that knowledge to advance research and this might even help patients:

    1 proslijeđeni tweet 1 korisnik označava da mu se sviđa
  14. 30. sij

    " is the of the . " - As we know that do not occur but happen after a period of . Today is – (1/2) @ClaireJathanna

    1 reply 1 proslijeđeni tweet
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  15. 30. sij
    Odgovor korisniku/ci

    Shit like this makes me glad I went until middle age. This looks like for people. It's barbaric.

  16. 30. sij
    Odgovor korisnicima

    Positive-he WILL COMMUTE his sentence either when ousted or in Nov. TRUE tragedy. I understand especially a child or young adult whom has a related disability;& live in nonreality state 24/7/365. They can have homicidal thoughts, etc. THIS IS REAL & COMMON

    1 reply 3 korisnika označavaju da im se sviđa
  17. 29. sij

    rare diseases remain, unfortunately, a challenge for both patients and research

    Knowledge is paramount to advance in research. But how do you map so scarce that it might affect just one person in the world? Welcome to the world of rare diseases:
  18. 29. sij

    Knowledge is paramount to advance in research. But how do you map so scarce that it might affect just one person in the world? Welcome to the world of rare diseases:

    2 korisnika označavaju da im se sviđa

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