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NBC casting call for a child in the
#SMAcommunity#spinalmuscularatrophy#MDAhttps://youtu.be/p2MwLSe-03I -
Casting Call for NBC Pilot! Huge Opportunity!
#SMA#SpinalMuscularAtrophy#kidscastingcall https://youtu.be/p2MwLSe-03I via@YouTube -
#Pharma:#Novartis verlost eine#Gentherapie für 100 todkranke Babys (#SpinalMuscularAtrophy) Eine Dosis d. Medikamentes#Zolgensma kostet über zwei Millionen Dollar. Kritiker sprechen von einer Überlebenslotterie: https://ogy.de/8ix0 Parallel dazu: https://ogy.de/ov70Prikaži ovu nit -
Professor Wolfgang Müller-Felber will shortly be taking to the stage at
#SMAcongress2020 to talk about the importance of newborn screening in#SMA patients. Join us in the auditorium!#Evry2020#SpinalMuscularAtrophy pic.twitter.com/7XAMmDVhR7
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The
@SMAEurope congress has begun! Stop by booth 4 to find out more about why newborn screening is critical for#SpinalMuscularAtrophy patients.#Evry2020#SMAcongress2020#SMApic.twitter.com/WsJ0Vkrvcv
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In October, Wisconsin began testing newborns for
#SpinalMuscularAtrophy. Piper was the first baby in Wisconsin identified through screening to receive Zolgensma, a new gene therapy. If given shortly after birth, the treatment is considered a cure. https://uw.health/2RV36HR -
Diagnosing
#SpinalMuscularAtrophy (#SMA) early, before irreversible damage occurs, is critical. Newborn screening means a diagnosis can happen before any symptoms or damage occurs!#Evry2020#SMAcongress2020pic.twitter.com/aBXlvUOgig
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We are proud to be taking part in the
@SMAEurope congress which starts this week! Check out what’s going on in the program: http://ow.ly/KxGJ50yc0Z6#Evry2020#SMAcongress2020#SpinalMuscularAtrophy#SMApic.twitter.com/Y2mlWODyl1
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New article, “The D Word," coming Wednesday. See you then!
#liveremARCably#myremARCs #sma#spinalmuscularatrophy#musculardystrophypic.twitter.com/iN5YSNIxrf
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"There's no point in having new medicines if they're priced so high, that the
#patients that need them can't get access".@diarmaidmcd on $2.1m#Zolgensma, the world's most expensive drug.#spinalmuscularatrophy@Novartis@AveXisInchttps://www.youtube.com/watch?v=XcVWKweMFTw&feature=youtu.be … -
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@AveXisInc today launch a lottery for the most expensive drug in the world - $2.1m#Zolgensma. 100 babies will be treated if lucky enough to be drawn. This#pharma company is deciding who will live & die.#spinalmuscularatrophy@Novartis@ijanifriend http://bit.ly/2uYGA81 pic.twitter.com/vMVz9AUrAF
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To all SMA warriors and families: Stay positive Stay focus Stay strong!
#spinalmuscularatrophy#spinalamuscularatrophyIndonesia#spinalmuscularatrophyAsia#spinalmuscularatrophyAsiapacific#smaIndonesia https://www.instagram.com/p/B8Gf3-qp3FW/?igshid=9s1r634ur7gs … -
#UWHealth treats#baby with $2.1m#genetherapy#Zolgensma after#newbornscreening identifes#spinalmuscularatrophy: Devastation, then hope: Platteville baby first in state treated for rare condition after screening https://madison.com/wsj/news/local/health-med-fit/devastation-then-hope-platteville-baby-first-in-state-treated-for/article_77f9010a-dea9-5779-b11f-aa1c372acbd8.html?utm_medium=social&utm_source=twitter&utm_campaign=user-share … via@WiStateJournal#sma#Wisconsin -
Spinal Muscular Atrophy
#SpinalMuscularAtrophy#SMA The cure costs $2.1 Million per patient. If they priced it for global accessibility, they would make $Billions a year worldwide. This would make business sense and shows a superior morality, by improving the human condition. https://twitter.com/nytimes/status/1161574445628166144 …pic.twitter.com/lFzz4hHdjr -
ICYMI: The Manufacturer of Spinal Muscular Atrophy Drug Zolgensma has Made a Lottery for Life http://bit.ly/2uMt2wj
#raredisease#genetherapy#SpinalMuscularAtrophy#SMA#Zolgensma@CureSMA -
We would all love to win the lottery but this version is heart breaking!!
#Zolgensma#Batista#spinalmuscularatrophy#SMAhttps://www.bbc.co.uk/news/world-us-canada-51181840 … -
Herkese teşekkürler, bilime teşekkürler, bilim insanlarına teşekkürler ve umudu taze tutanlara teşekkürler. Daha nicelerini de göreceğimize inancım tam
#GeneticsOfHope#SpinalMuscularAtrophy@GeneticsofHopePrikaži ovu nit -
Dear SMA community, guy have options now. We’re going to make sure of that. . . . . . . .
#spinalmuscularatrophy#spinalmuscularatrophytype1#spinalmuscularatrophytype2#spinalmuscularatrophytype3… https://www.instagram.com/p/B79GMxCJTTu/?igshid=10ekc92h8oday … -
Urgent help is needed! It is not a spam. All donations much appreciated. We almost reached needed amount. Thank you, direct link to charity website https://www.siepomaga.pl/en/ocalic-julke
#sma#help#donation#bbc3cr#helpachild#bbc#disease#siepomaga#charity#spinalmuscularatrophy#helping -
Babies born with
#SMA Type 1 show signs of the disease before they are 6 months old. Without treatment, life expectancy is usually below 2 years. These are the signs and symptoms of#SpinalMuscularAtrophy: http://bit.ly/S4RSMASymptomsEng …pic.twitter.com/fmdkoq3uWR
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