Rezultati pretraživanja
  1. Casting Call for NBC Pilot! Huge Opportunity! via

  2. : verlost eine für 100 todkranke Babys () Eine Dosis d. Medikamentes kostet über zwei Millionen Dollar. Kritiker sprechen von einer Überlebenslotterie: Parallel dazu:

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  3. prije 18 sati

    Professor Wolfgang Müller-Felber will shortly be taking to the stage at to talk about the importance of newborn screening in patients. Join us in the auditorium!

  4. prije 21 sat

    The congress has begun! Stop by booth 4 to find out more about why newborn screening is critical for patients.

  5. In October, Wisconsin began testing newborns for . Piper was the first baby in Wisconsin identified through screening to receive Zolgensma, a new gene therapy. If given shortly after birth, the treatment is considered a cure.

  6. 4. velj

    Diagnosing () early, before irreversible damage occurs, is critical. Newborn screening means a diagnosis can happen before any symptoms or damage occurs!

  7. 4. velj

    We are proud to be taking part in the congress which starts this week! Check out what’s going on in the program:

  8. 3. velj

    New article, “The D Word," coming Wednesday.⁣ ⁣ See you then!⁣ ⁣ ⁣ ⁣

  9. 3. velj

    "There's no point in having new medicines if they're priced so high, that the that need them can't get access". on $2.1m , the world's most expensive drug.

  10. 3. velj

    . today launch a lottery for the most expensive drug in the world - $2.1m . 100 babies will be treated if lucky enough to be drawn. This company is deciding who will live & die.

  11. 3. velj
  12. Spinal Muscular Atrophy The cure costs $2.1 Million per patient. If they priced it for global accessibility, they would make $Billions a year worldwide. This would make business sense and shows a superior morality, by improving the human condition.

  13. 31. sij

    ICYMI: The Manufacturer of Spinal Muscular Atrophy Drug Zolgensma has Made a Lottery for Life

  14. 31. sij

    We would all love to win the lottery but this version is heart breaking!!

  15. 30. sij

    Herkese teşekkürler, bilime teşekkürler, bilim insanlarına teşekkürler ve umudu taze tutanlara teşekkürler. Daha nicelerini de göreceğimize inancım tam ❤

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  16. 29. sij

    Urgent help is needed! It is not a spam. All donations much appreciated. We almost reached needed amount. Thank you, direct link to charity website

  17. 29. sij

    Babies born with Type 1 show signs of the disease before they are 6 months old. Without treatment, life expectancy is usually below 2 years. These are the signs and symptoms of :

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