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70% of those (6,000 individually rare collectively common) genetic rare diseases start in childhood.
#rareiscommon#rarediseaseday2020 https://www.rarediseaseday.org/article/what-is-a-rare-disease … -
Individually rare, collectively common
#RareDiseaseDay2020 https://twitter.com/22Q11_Ireland/status/1222288381973057541 …Prikaži ovu nit -
Come join us on the 29th of February (9am-2pm) at
@GertrudesHosp - Muthaiga, as we discuss and share all matters rare! ~ Rare is Many. ~ Rare is Strong. ~ Rare is Proud. Kindly RSVP on the link below (Entry FREE) https://rddke2020.eventbrite.com#RareDiseaseKE#RareDiseaseDay2020 -
Today is the first day of
#RareDiseaseDay2020 ! HCU Fact #1:#Homocystinuria was described for the first time in 1962 by Irish pediatricians Nina Carson and Desmond Neill. In 1969 Dr. H. Levy and Dr. H. Mudd describe the enzymatic defect causing#Cobalamin C deficiencypic.twitter.com/eNkCZowTvC
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Siamo rari, ma insieme siamo tanti e anche più forti
#RDD2020#showyoursupport#mostraciiltuosupporto#RareDiseaseDay#GiornataMalattieRare#RareDiseaseDay2020#GiornataMalattieRare2020#lgmd#lgmd1f#lgmdd2#malattiarara#raredisease#limbgirdlemusculardystrophyPrikaži ovu nit -
“Rare is many. Rare is strong. Rare is proud.” Be a part of the collective voice of the rare disease community and add our
#CHIbra Frame to your profile picture: http://www.facebook.com/profilepicframes/?selected_overlay_id=192498451870364 … Meet HI mom, Julie Sheldon, and her son Crosby!#RareDiseaseDay2020 pic.twitter.com/XkXpfnxxf0
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"Put a little love in your
" and the HCU community will be a happy place - read the February HCU Herald! - https://mailchi.mp/623b2d342517/put-a-little-love-in-your-and-the-hcu-community-will-be-a-happy-place-read-the-february-hcu-herald …
#HCUHero#LowProBitesss#LowProRecipes#RareDiseaseDay2020#ItsInMyGenes#WearThatYouCare#MedicalNutritionEquityAct#GoLowPro#AskMethiapic.twitter.com/Bs98yEJxCg
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Approximately 8% of the Australian population live with any one of about 10,000 known rare diseases.
#rarediseaseawareness#rarediseaseday2020#awareness#pcd https://www.instagram.com/p/B8H5dr_A10I/?igshid=196f8wrexb1kz … -
HCU Fact #3: Every state in the US now test for HCU (Homocystinuria) at birth, but roughly 25-50% of cases are not detected. Not every country has newborn screening that includes testing for HCU.
#ShowYourStripes#ItsInMyGenes#RareDiseaseDay2020#HCUAwareness#GoBlueForHCUpic.twitter.com/0y4w6d7Y76
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Individually rare collectively common, often with very common symptoms but no
#dotjoin#thinkrareinprimarycare#rarediseaseday2020#Feb29thhttps://link.springer.com/article/10.1007%2Fs11845-019-02168-4 … -
Fact #2 . Rare disease day is on the 29 February.please share to promote rare !
#rarediseaseday#rarediseaseday2020#awareness#pcd @ Sunbury, Victoria https://www.instagram.com/p/B8Gj8ZTAzDn/?igshid=1osgwhw33f4sw … -
Anche quest'anno il Comitato IMI lancia un'iniziativa a favore delle malattie rare in occasione del
#RareDiseaseDay2020. L'evento#ShowYourColors è rivolto alle persone affette da malattie rare, con e senza nome, ai… https://www.instagram.com/p/B8EWrj1oexh/?igshid=w5937rsa3nrp … -
https://www.rarediseaseday.org/stories/6629?fbclid=IwAR2KwdKEx07BdRpjy2y3mp16iU51ORb6F77uFkF58JDbtayNt6V9Ewo5n0I … Thank you Patti Gilstrap for helping raise awareness for Central Pain Syndrome and Cavernous Angioma.
#angiomaalliance#becausebrainsshouldntbleed#rarediseaseday2020 pic.twitter.com/01oKxdUoPo
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2/2 race, so you can complete your distance at any time or place that is convenient for you. Locally you can also join us on the 29th at Juergens Park in Tomball
@9am on 2/29. You can run, walk, or bike. PayPal, Zelle or Cash App#RareDiseaseDay2020#ILoveSomeoneRarePrikaži ovu nit -
@rareireland parent support group will be raising#RareDiseaseDayIrl awareness during the month leading up to#RareDiseaseDay2020#Feb29 to highlight the significant amount of children affected by individually rare but collectively common rare conditions#rareisnotrare -
Happy new month everyone!
#February for us means we are closer than ever to celebrating#Rarediseaseday2020. We are excited to count down with you and also tell you more about#RareDiseases and Rare Disease Ghana Initiative . On day 1 of the countdown,…https://lnkd.in/gZ-rixE -
Meet the “CHIbras!”
#RareDiseaseDay2020 is at the end of this month on February 29, the RAREst of the year, because this year is a leap year! The#zebra is the symbol for the#raredisease community, so get ready to show your CHIbra stripes!#hyperinsulinism#hypoglycemiapic.twitter.com/RtkJt9qIlA
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Today
#CENTOGENE is kicking off our#RareDiseaseDay2020 campaign, which will be marked with three events in Lahore, Berlin, & Mexico City on 29 Feb. 2020 – raising awareness amongst the global community. Join us as we raise a#VoiceForRare. Find out more: https://bit.ly/3aT18iB pic.twitter.com/bjpZapzSDE
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@ Planet Earth