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    70% of those (6,000 individually rare collectively common) genetic rare diseases start in childhood.

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    Come join us on the 29th of February (9am-2pm) at - Muthaiga, as we discuss and share all matters rare! ~ Rare is Many. ~ Rare is Strong. ~ Rare is Proud. Kindly RSVP on the link below (Entry FREE)

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    Today is the first day of ! HCU Fact #1: was described for the first time in 1962 by Irish pediatricians Nina Carson and Desmond Neill. In 1969 Dr. H. Levy and Dr. H. Mudd describe the enzymatic defect causing C deficiency

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    “Rare is many. Rare is strong. Rare is proud.” Be a part of the collective voice of the rare disease community and add our Frame to your profile picture: Meet HI mom, Julie Sheldon, and her son Crosby!

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    Approximately 8% of the Australian population live with any one of about 10,000 known rare diseases.

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    HCU Fact #3: Every state in the US now test for HCU (Homocystinuria) at birth, but roughly 25-50% of cases are not detected. Not every country has newborn screening that includes testing for HCU.

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    Fact #2 . Rare disease day is on the 29 February.please share to promote rare ! @ Sunbury, Victoria

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    Anche quest'anno il Comitato IMI lancia un'iniziativa a favore delle malattie rare in occasione del . L'evento è rivolto alle persone affette da malattie rare, con e senza nome, ai…

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    2/2 race, so you can complete your distance at any time or place that is convenient for you. Locally you can also join us on the 29th at Juergens Park in Tomball on 2/29. You can run, walk, or bike. PayPal, Zelle or Cash App

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    parent support group will be raising awareness during the month leading up to to highlight the significant amount of children affected by individually rare but collectively common rare conditions

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    Happy new month everyone! for us means we are closer than ever to celebrating . We are excited to count down with you and also tell you more about and Rare Disease Ghana Initiative . On day 1 of the countdown,…

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    Meet the “CHIbras!” is at the end of this month on February 29, the RAREst of the year, because this year is a leap year! The is the symbol for the community, so get ready to show your CHIbra stripes!

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    Today is kicking off our campaign, which will be marked with three events in Lahore, Berlin, & Mexico City on 29 Feb. 2020 – raising awareness amongst the global community. Join us as we raise a . Find out more:

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