-
Osobe Vidi sve
@RareDiseases National Organization for Rare Disorders (
#NORD) is the voice of the#raredisease community. Official U.S. sponsor of#RareDiseaseDayOvjeren akaunt@CheckOrphan CheckOrphan is the leading
#news and information platform dedicated to#rarediseases and#orphandrugs -
The
@ChanZuckerberg Initiative has selected 30 patient groups to receive $450,000 each over two years to help advance research for#rarediseases. We are proud to announce that more than 50% of the selected organizations are NORD members. Read more: https://bit.ly/36VZlpE -
A fashionable way to remember the female carriers of
#rarediseases & support the cause: https://twitter.com/remember_girls/status/1224037327699435521 …
-
Patient groups, academics, healthcare professionals and all other interested parties having conducted research or studies on
#rarediseases or public health projects are encouraged to submit a poster abstract to the#ECRD2020 Check out the themes: https://www.rare-diseases.eu/posters/ https://twitter.com/eurordis/status/1224247430545317888 …
-
2nd
#EuroBloodNet#Preceptorship for#AplasticAnemia &#ParoxysmalNocturnalHemoglobinuria :"from the bench to the bedside" started yestderday! Hosting AOU Federico II-Naples and led by Prof. Antonio Risitano. Welcome to the participants!!#PNH#AA#ERNeu#RareDiseases@IolasconLpic.twitter.com/LV2WtLMLEa
-
7,000
#RareDiseases, one community fighting for cures. We’re excited to be part of the@ChanZuckerberg Initiative#RareAsOne Network to accelerate science and find treatment options for rare diseases (like#LiFraumeni Syndrome!) http://www.RareAsOne.org pic.twitter.com/RthIXHJisB
-
#tfp#mito#lchadd#mtfp#genetics#genetics#RareDisease#RareDiseaseDay#rarediseases To learn more about Noas rare condition https://ghr.nlm.nih.gov/condition/mitochondrial-trifunctional-protein-deficiency …Prikaži ovu nit -
Congratulations to all the
#RareDiseases teams that have received this generous grant! https://twitter.com/RareDiseases/status/1224379039571496961 … -
Though
#RareDiseaseDay is on the 29th of February, we join others in raising awareness for those diagnosed or undiagnosed with one or more of the >7000#rarediseases.#StrengthInUnitypic.twitter.com/Cv5RSjkyDj
-
Really
@CBS@CBSNews@CBSThisMorning ? You banned a commerical about@AkridgeRE#Marijuana medicine that is natural doesn't have side effects ,kills cancer ,helps seizures & helps save my life daily. I was able to get off 15 pills & 02.#Rarediseases https://www.tmz.com/2019/01/24/medical-marijuana-ad-cbs-banned-super-bowl-broadcast/ … -
I'm sure it's going to be a great event, raising awareness however big or small really does make a huge difference in the world of
#RareDiseases
https://twitter.com/OPENHealth/status/1224299717443670016 …
-
Really building momentum over here at
@dermetel
. Follow me and watch me make subpar graphics while learning about #rarediseases https://twitter.com/dermetel/status/1224089574391107584 …
-
One Day Participation slots available at "World Congress on STD - Virology and Rare Diseases" at London, UK during March 19-20, 2020
#virology#rarediseases#virus#vaccines For more info: https://www.longdom.com/cme-virology E-mail: virology@longdommeetings.com Reach us: +32 466903217pic.twitter.com/VM0q5jPFzR -
Every stripe has a story. I have tethered cord syndrome, one of 7K+
#rarediseases.#showyourstripes#RareDiseaseDaypic.twitter.com/qwP5wFoCAK
-
What an amazing nonprofit organization bringing awareness to
#RareDiseases. Thank you@UpliftingAth!#wetacklerare (also go#49ers
)https://twitter.com/UpliftingAth/status/1222994026678378496 …
-
Happy new month everyone!
#February for us means we are closer than ever to celebrating#Rarediseaseday2020. We are excited to count down with you and also tell you more about#RareDiseases and Rare Disease Ghana Initiative . On day 1 of the countdown,…https://lnkd.in/gZ-rixE -
There's still time to register for
#RareDiseaseDay at NIH?
Join NCATS and @NIHClinicalCntr to hear about the latest collaborative research for#RareDiseases: https://go.usa.gov/xdrgY#RDDNIHpic.twitter.com/Z1aSXmXZRu
-
Brilliant to be at
@TakedaPharma office opening in Paddington today & to see powerful#IamNumber17 campaign, telling the story of patients with#rarediseases pic.twitter.com/XwhEed1bKW
-
Great week here at the Cycle Pharmaceuticals headquarters offices in Cambridge, UK. We had our all staff meeting in full swing with some important guests!
#CyclePharma#RareDiseases pic.twitter.com/XAyinJ76yP
-
How are you celebrating or advocating for
#rarediseases on#RareDiseaseDay ??https://twitter.com/rarediseaseday/status/1222474543815589888 …
-
Patient advocacy groups play a remarkable and unique role in forming the collective voice of individuals living with
#rarediseases. They help in the identification, diagnosis, management, treatment, and prevention of such diseases.
Čini se da učitavanje traje već neko vrijeme.
Twitter je možda preopterećen ili ima kratkotrajnih poteškoća u radu. Pokušajte ponovno ili potražite dodatne informacije u odjeljku Status Twittera.
