Rezultati pretraživanja

  1. Osobe Vidi sve

  2. prije 20 sati

    The Initiative has selected 30 patient groups to receive $450,000 each over two years to help advance research for . We are proud to announce that more than 50% of the selected organizations are NORD members. Read more:

    1 reply 42 proslijeđena tweeta 105 korisnika označava da im se sviđa
  3. prije 41 minutu

    A fashionable way to remember the female carriers of & support the cause:

    Support our cause and purchase some Remember The Girls merch!🤗🎀
  4. prije 26 minuta

    Patient groups, academics, healthcare professionals and all other interested parties having conducted research or studies on or public health projects are encouraged to submit a poster abstract to the Check out the themes:

    Only one week left to submit your poster abstract for for the chance to have your work featured at the largest, patient-led rare disease event. Find out more about the 8 poster themes:
    1 korisnik označava da mu se sviđa
  5. prije 6 sati

    2nd for & :"from the bench to the bedside" started yestderday! Hosting AOU Federico II-Naples and led by Prof. Antonio Risitano. Welcome to the participants!!

    1 proslijeđeni tweet 2 korisnika označavaju da im se sviđa
  6. prije 10 sati

    7,000 , one community fighting for cures. We’re excited to be part of the Initiative Network to accelerate science and find treatment options for rare diseases (like Syndrome!)

    5 korisnika označava da im se sviđa
  7. prije 12 sati

    To learn more about Noas rare condition

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  8. prije 19 sati

    Congratulations to all the teams that have received this generous grant!

    The Initiative has selected 30 patient groups to receive $450,000 each over two years to help advance research for . We are proud to announce that more than 50% of the selected organizations are NORD members. Read more:
  9. prije 19 sati

    Though is on the 29th of February, we join others in raising awareness for those diagnosed or undiagnosed with one or more of the >7000 .

    3 proslijeđena tweeta 3 korisnika označavaju da im se sviđa
  10. prije 21 sat

    Really ? You banned a commerical about medicine that is natural doesn't have side effects ,kills cancer ,helps seizures & helps save my life daily. I was able to get off 15 pills & 02.

    1 proslijeđeni tweet 1 korisnik označava da mu se sviđa
  11. prije 21 sat

    I'm sure it's going to be a great event, raising awareness however big or small really does make a huge difference in the world of 👏👏

    Our Director of Rare Disease, Gavin Jones, is pleased to have been asked to judge the entries in Rare Disease UK’s inaugural film festival. We are kindly calling on our network of companies to take a look and consider supporting this great initiative:
    1 proslijeđeni tweet 2 korisnika označavaju da im se sviđa
  12. prije 22 sata

    Really building momentum over here at 😂. Follow me and watch me make subpar graphics while learning about

    Having a can be isolating, but we have been so encouraged to see such a strong community of online. works with rare skin and metabolic diseases; and we can't wait to make new friends.
    2 korisnika označavaju da im se sviđa
  13. 3. velj

    One Day Participation slots available at "World Congress on STD - Virology and Rare Diseases" at London, UK during March 19-20, 2020 For more info: E-mail: virology@longdommeetings.com Reach us: +32 466903217

    1 proslijeđeni tweet 9 korisnika označava da im se sviđa
  14. 2. velj

    Every stripe has a story. I have tethered cord syndrome, one of 7K+ .

    2 korisnika označavaju da im se sviđa
  15. 1. velj

    What an amazing nonprofit organization bringing awareness to . Thank you ! (also go 😉😉)

    Calling all 2020 NFL Hopefuls: Join us as by using your NFL Combine or Pro Day performance to inspire the Rare Disease Community with hope. Since 2015, 103 NFL prospects have dedicated their NFL Combine or Pro Day to supporting the Rare Disease Community.
    2 korisnika označavaju da im se sviđa
  16. 1. velj

    Happy new month everyone! for us means we are closer than ever to celebrating . We are excited to count down with you and also tell you more about and Rare Disease Ghana Initiative . On day 1 of the countdown,…

    2 proslijeđena tweeta 1 korisnik označava da mu se sviđa
  17. 31. sij

    There's still time to register for at NIH? ⏰ Join NCATS and to hear about the latest collaborative research for :

    5 proslijeđenih tweetova 9 korisnika označava da im se sviđa
  18. 30. sij

    Brilliant to be at office opening in Paddington today & to see powerful campaign, telling the story of patients with

    6 proslijeđenih tweetova 10 korisnika označava da im se sviđa
  19. 29. sij

    Great week here at the Cycle Pharmaceuticals headquarters offices in Cambridge, UK. We had our all staff meeting in full swing with some important guests!

    1 proslijeđeni tweet
  20. 29. sij

    How are you celebrating or advocating for on ??

    Only 1 month to go until 2020! Find out all the ways you can get involved 
    2 proslijeđena tweeta 6 korisnika označava da im se sviđa
  21. 29. sij

    Patient advocacy groups play a remarkable and unique role in forming the collective voice of individuals living with . They help in the identification, diagnosis, management, treatment, and prevention of such diseases.

    5 proslijeđenih tweetova 18 korisnika označava da im se sviđa

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