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  1. Osobe Vidi sve

  2. 29. sij

    The message for 2020 is that rare is many worldwide, rare is strong every day and that rare is proud everywhere! Download the campaign materials at

  3. 29. sij

    Only 1 month to go until 2020! Find out all the ways you can get involved 

  4. 31. sij

    Did you know? Rare Disease Day is a global awareness raising campaign promoting equity for all people living with a rare disease. Download and edit infographics from . Share them to spread the word about Rare Disease Day on 29 February!

  5. 2. velj

    People with live with a every single day. But on Feb 29, the rarest date in the calendar, we celebrate . Visit to read stories and see what events are happening.

  6. is held on the last day of February every year to raise awareness of . Please share our posters (click on link) > and help raise awareness of .

  7. 27. sij

    As at NIH approaches, NCATS Director Chris Austin, M.D., shares his encounter w/an end-stage ALS patient, over 30 yrs ago—“I have come to realize that , while intensely personal, are also an urgent issue.”

  8. 2. velj

    Rare diseases may be rare individually, but they cumulatively affect many more people than you might know. Did you know there are 300 million of us living with them worldwide.

  9. 2. velj

    Check out this year's poster for ! It features Gauthier, who is living with sickle cell, and his mum.

  10. 30. sij

    New! Share the official social media visuals for the 2020 campaign now available to download via The visuals are also available in editable files to be translated.

  11. is coming up and we are looking forward to being part of it! We are delighted to have a pituitary patient sharing her story at the Welsh Reception at The Senedd - a great opportunity to raise pituitary awareness in the wider community

  12. Did you know that there are 300 million people living with a rare disease worldwide? Together, we are strong and proud. Join debra of America in celebrating on February 29! There are many ways to make your impact. Learn more at:

  13. prije 3 sata

    is on February 29th! We hope you choose to raise awareness for & support our Rare Disease Community! If you post on instagram on the 29th, we’ll make sure to share your post on our stories!…

  14. prije 5 sati

    Thank you! I am actually just raising awareness, as part of my general campaigning for 2020

    Prikaži ovu nit
  15. prije 6 sati

    The countdown to is on! We have lots of exciting activities in store to celebrate this wonderful community – stay tuned.

  16. Though is on the 29th of February, we join others in raising awareness for those diagnosed or undiagnosed with one or more of the >7000 .

  17. prije 8 sati
    Hope
Rare Disease Day
  18. prije 10 sati
  19. prije 11 sati

    Share our daily facts throughout February to raise awareness.

  20. What kind of event do you have planned for ? Let us know in the comments below and share it at !

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