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Osobe Vidi sve
@rarediseaseday 29 February 2020 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases.
#RareDiseaseDay@RareDayUS 2/28/19.
#ShowYourStripes & join the movement in the US & around the world for#RareDiseaseDay. (Hosted in the US by@RareDiseases.) -
The message for
#RareDiseaseDay 2020 is that rare is many worldwide, rare is strong every day and that rare is proud everywhere! Download the campaign materials at https://www.rarediseaseday.org/downloads pic.twitter.com/Xl12Ry00qj
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Only 1 month to go until
#RareDiseaseDay 2020! Find out all the ways you can get involved http://rarediseaseday.org/article/get-involved …pic.twitter.com/eBRJe1lonl
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Did you know? Rare Disease Day is a global awareness raising campaign promoting equity for all people living with a rare disease. Download and edit
#RareDiseaseDay infographics from http://ow.ly/Ge5J50y8M7Q . Share them to spread the word about Rare Disease Day on 29 February!pic.twitter.com/eSTs72ARRM
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People with
#scleroderma live with a#RareDisease every single day. But on Feb 29, the rarest date in the calendar, we celebrate#RareDiseaseDay. Visit http://rarediseaseday.org to read stories and see what events are happening.pic.twitter.com/QmLnoRggbt
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@rarediseaseday is held on the last day of February every year to raise awareness of#rarediseases. Please share our posters (click on link) > https://www.facebook.com/media/set/?set=a.2789153397818325&type=3 … and help raise awareness of#IdiopathicHypersomnia.#RareDiseaseDay#IH#LivingWithIdiopathicHypersomniapic.twitter.com/y3FaGucxRx
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As
#RareDiseaseDay at NIH approaches, NCATS Director Chris Austin, M.D., shares his encounter w/an end-stage ALS patient, over 30 yrs ago—“I have come to realize that#RareDiseases, while intensely personal, are also an urgent#PublicHealth issue.” https://go.usa.gov/xVZtV#RDDNIHpic.twitter.com/ea0T93Xtm9
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Rare diseases may be rare individually, but they cumulatively affect many more people than you might know. Did you know there are 300 million of us living with them worldwide.
#wearethe300million#RareDiseaseDay#raiseawarenesspic.twitter.com/U0REwoXbPg
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Check out this year's poster for
#RareDiseaseDay! It features Gauthier, who is living with sickle cell, and his mum.#SickleCell#SCD#WeAreThe300Millionpic.twitter.com/6s4t6YLr10
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New! Share the official social media visuals for the
#RareDiseaseDay 2020 campaign now available to download via http://rarediseaseday.org/downloads The visuals are also available in editable files to be translated.pic.twitter.com/Nm6o7e8PRi
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#RareDiseaseDay is coming up and we are looking forward to being part of it! We are delighted to have a pituitary patient sharing her story at the Welsh Reception at The Senedd - a great opportunity to raise pituitary awareness in the wider community http://ow.ly/4b2S50ybOl4 pic.twitter.com/HOIcKigCW3
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Did you know that there are 300 million people living with a rare disease worldwide? Together, we are strong and proud. Join debra of America in celebrating
#RareDiseaseDay on February 29! There are many ways to make your impact. Learn more at: http://debra.org/rare-disease-day …pic.twitter.com/0y1tQae6XT
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#RareDiseaseDay is on February 29th! We hope you choose to raise awareness for#CRPS & support our Rare Disease Community! If you post on instagram on the 29th, we’ll make sure to share your post on our stories!… https://www.instagram.com/p/B8HrZtygttG/?igshid=1ncepp0ws9d2b … -
How are you supporting
#RareDiseaseDay this year? https://twitter.com/rarediseaseday/status/1224324336657584130 …
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Thank you! I am actually just raising awareness, as part of my general campaigning for
#RareDiseaseDay 2020Prikaži ovu nit -
The countdown to
#RareDiseaseDay is on! We have lots of exciting activities in store to celebrate this wonderful community – stay tuned.#RareLivesHere#ReframeRarepic.twitter.com/HnVVu0DkRu
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Though
#RareDiseaseDay is on the 29th of February, we join others in raising awareness for those diagnosed or undiagnosed with one or more of the >7000#rarediseases.#StrengthInUnitypic.twitter.com/Cv5RSjkyDj
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Share our daily
#RareDiseaseDay facts throughout February to raise awareness. pic.twitter.com/CUfalcFQy8
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What kind of event do you have planned for
#RareDiseaseDay? Let us know in the comments below and share it at https://www.rarediseaseday.org/send-us-your-event … !pic.twitter.com/QZHaRTAfYO
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